From Mommy's Facebook Page
This may be my 2nd 4th without my son Jayden, but to me it is still as painful as the 1st!
CDH took my SON & ANY chance at a 1st, let alone ANY 4th of July with HIM & ME!! I WILL NEVER FORGIVE GOD FOR TAKING THAT AND HIM AWAY FROM ME!!!!
Monday, July 4, 2011
Thursday, June 30, 2011
Sunday, June 19, 2011
June 19, 2011 - Please VOTE!
From Mommy's Facebook Page
June 19, 2011
There are moments in life when you wish you could bring someone down from heaven... and spend the day with them just one more time, kiss them goodbye or hear their voice again.
~~~~~~~~~~~~~~~~~~~~~~
16 Months ago today I gave birth to the most BEAUTIFUL baby boy ever! And just 23 DAYS later I had to say goodbye with him in my arms!
NO mom OR dad should have to say goodbye to their baby.
PLEASE go VOTE and help me save other moms and dads from having to say goodbye like I had to do. (Remember this could be YOUR baby too!!!!!!!)
Please help me give my son LOTS of votes in his name and help me show him he will never be forgotten or left behind! Lets help ROCK the votes and get the grand prize so we can do the research and TRULY help these babes!
June 19, 2011
There are moments in life when you wish you could bring someone down from heaven... and spend the day with them just one more time, kiss them goodbye or hear their voice again.
~~~~~~~~~~~~~~~~~~~~~~
16 Months ago today I gave birth to the most BEAUTIFUL baby boy ever! And just 23 DAYS later I had to say goodbye with him in my arms!
NO mom OR dad should have to say goodbye to their baby.
PLEASE go VOTE and help me save other moms and dads from having to say goodbye like I had to do. (Remember this could be YOUR baby too!!!!!!!)
Please help me give my son LOTS of votes in his name and help me show him he will never be forgotten or left behind! Lets help ROCK the votes and get the grand prize so we can do the research and TRULY help these babes!
Thursday, June 16, 2011
Wednesday, June 15, 2011
Monday, June 6, 2011
June 6, 2011 - AMAZING women!!
From Grandma's Facebook Page
AMAZING women...
One has been in labor for 25 hours and will be having a c-section to deliver her baby who will be born with CDH.
The other just lost her daughter to CDH 1 month after she was born.
The amazing part to this is that through being in labor and grieving, they are pushing hard for votes for CHERUBS!
It's people with that kind of dedication that can help win funds for CDH research!
AMAZING women...
One has been in labor for 25 hours and will be having a c-section to deliver her baby who will be born with CDH.
The other just lost her daughter to CDH 1 month after she was born.
The amazing part to this is that through being in labor and grieving, they are pushing hard for votes for CHERUBS!
It's people with that kind of dedication that can help win funds for CDH research!
Thursday, June 2, 2011
June 2, 2011 - Another Cherub Lost
From Grandma's Facebook Page
Changing my profile picture in memory of baby Penelope who lost her battle against CDH today. Fly high little angel! :'(
Changing my profile picture in memory of baby Penelope who lost her battle against CDH today. Fly high little angel! :'(
Tuesday, May 31, 2011
May 31, 2011 - Cherubs Lost in May 2011
Please pray for the families of all these Cherubs lost in May... :'(
♥ Bryson ♥ Phoenix ♥ Kellan ♥
♥ Bryson ♥ Phoenix ♥ Kellan ♥
Sunday, May 29, 2011
May 29, 2011 - CDH is "Hinted" at in Local Hospital's Video!
(From Mommy's Facebook Page)
Even just the few seconds they said it and the fact they only said Congenital Diaphragmatic and didn't say Hernia we know they ARE talking about CDH and now with just this SMALL bit of spreading the word I see it as the 1st step to FINALLY get the word out and 1 step closer to ENDING CDH for GOOD!
Even just the few seconds they said it and the fact they only said Congenital Diaphragmatic and didn't say Hernia we know they ARE talking about CDH and now with just this SMALL bit of spreading the word I see it as the 1st step to FINALLY get the word out and 1 step closer to ENDING CDH for GOOD!
Friday, May 27, 2011
May 27, 2011 - Jayden has a New Playmate...
(From Grandma's Facebook Page)
Changing my profile photo in memory of Kellan, a 4 yr old CDH Cherub lost this week in a pool accident. Please keep his family in your prayers.
~~~~~~~~~~~~~~
It just makes no sense! This little guy fought so HARD & beat the odds against the CDH monster, only to lose his life to an accident???
~~~~~~~~~~~~~~
Changing my profile photo in memory of Kellan, a 4 yr old CDH Cherub lost this week in a pool accident. Please keep his family in your prayers.
~~~~~~~~~~~~~~
It just makes no sense! This little guy fought so HARD & beat the odds against the CDH monster, only to lose his life to an accident???
~~~~~~~~~~~~~~
Tuesday, May 24, 2011
May 24, 2011 - Keep CDH Awareness Trucking in Memory of Jayden!
(From Grandma's Facebook Page)
^^^^^^^^^^^^^^l |^^^^^^^^^^| l
| ♥ INCREASE CDH AWARENESS ♥ .....||”"”;..,___.
|……_______=====_| l______________l _||__|…, ] | |
“(@)’(@)”""""""*l'(@)l'(@)l """"""""""""""(@)'(@)""""'(@)
Put this on your status & keep this convoy going.
^^^^^^^^^^^^^^l |^^^^^^^^^^| l
| ♥ INCREASE CDH AWARENESS ♥ .....||”"”;..,___.
|……_______=====_| l______________l _||__|…, ] | |
“(@)’(@)”""""""*l'(@)l'(@)l """"""""""""""(@)'(@)""""'(@)
Put this on your status & keep this convoy going.
Monday, May 23, 2011
May 23, 2011 - Voting for Vivint in Honor of Clara & Samuel
(From Grandma's Facebook Page)
Today we vote in honor of CHD baby Clara who is almost 2 months old & just stepped down to the Intermediate Nursery from the NICU on Thurs, and in memory of CDH baby Samuel whose parents had to say goodbye on Christmas Eve after such a courageous fight!
Please join us in voting for CHERUBS so they can help of these most precious children & the families!
Today we vote in honor of CHD baby Clara who is almost 2 months old & just stepped down to the Intermediate Nursery from the NICU on Thurs, and in memory of CDH baby Samuel whose parents had to say goodbye on Christmas Eve after such a courageous fight!
Please join us in voting for CHERUBS so they can help of these most precious children & the families!
Saturday, May 21, 2011
May 21, 2011 - Today we vote in honor of Benjamin & Ava
(From Grandma's Facebook Page)
Today we vote in honor of Cherub baby Benjamin who had corrective surgery 2 days ago & in memory of Cherub Ava whose 47 days on ECMO was an incredible testimony to these babies will to fight & doctor's willingness to give her a chance. May her pink boxing gloves glow with gold in Heaven!
PLEASE VOTE!
Today we vote in honor of Cherub baby Benjamin who had corrective surgery 2 days ago & in memory of Cherub Ava whose 47 days on ECMO was an incredible testimony to these babies will to fight & doctor's willingness to give her a chance. May her pink boxing gloves glow with gold in Heaven!
PLEASE VOTE!
Friday, May 20, 2011
May 19/20, 2011 - 14 Months Since Jayden was Born...
(From Grandma's Facebook Page)
May 19, 2011
Today's votes are in honor of baby Matthew whose parents drove ALL THE WAY ACROSS THE COUNTRY to get him from California to Shands in Florida. He is now he working on feeding so he can go home, and memory of Shane Torrence. We wish he were here with us but I bet he is SO proud of what his mom Dawn has done to make CHERUBS what it is today!
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May 20, 2011
Today we are voting in honor of Tracy, a 42 yr old Cherub that only found out she had CDH at 39 & is still waiting for surgery (long story).
Yes, this in NOT the 1st adult undiagnosed How many more are there?
Also I am voting in memory of Cherub Brielle. Her family is honoring her memory by hosting Breath's For Brielle "Bubble Walk for CHERUBS". CDH may have taken her but her spirit lives on!
May 19, 2011
Today's votes are in honor of baby Matthew whose parents drove ALL THE WAY ACROSS THE COUNTRY to get him from California to Shands in Florida. He is now he working on feeding so he can go home, and memory of Shane Torrence. We wish he were here with us but I bet he is SO proud of what his mom Dawn has done to make CHERUBS what it is today!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
May 20, 2011
Today we are voting in honor of Tracy, a 42 yr old Cherub that only found out she had CDH at 39 & is still waiting for surgery (long story).
Yes, this in NOT the 1st adult undiagnosed How many more are there?
Also I am voting in memory of Cherub Brielle. Her family is honoring her memory by hosting Breath's For Brielle "Bubble Walk for CHERUBS". CDH may have taken her but her spirit lives on!
Thursday, May 19, 2011
May 19, 2011 - Many THANKS to our CDH friends!
(From Grandma's Facebook Page)
I am absolutely AMAZED at the number of CDH friends who helped the NMF win $25K in round 1 in the Chase Community Giving contest. <tear!>
Round 2 starts today & runs until May 25th for the possibility of winning an even bigger amount.
I am asking ALL my family & friends to join us in helping to "Have-a-Heart for Marfan". If not for all the hard work & research the NMF does my Marfan husband might not be with us!
(At the time this was posted, Mommy & Grandma had not yet been diagnosed with Marfan syndrome yet)
I am absolutely AMAZED at the number of CDH friends who helped the NMF win $25K in round 1 in the Chase Community Giving contest. <tear!>
Round 2 starts today & runs until May 25th for the possibility of winning an even bigger amount.
I am asking ALL my family & friends to join us in helping to "Have-a-Heart for Marfan". If not for all the hard work & research the NMF does my Marfan husband might not be with us!
(At the time this was posted, Mommy & Grandma had not yet been diagnosed with Marfan syndrome yet)
Wednesday, May 18, 2011
May 18, 2011 - Voting in Vivint in honor of Ciaran & Bryson
(From Grandma's Facebook Page)
Today I am voting in honor of baby Ciaran who was born May 5th, had surgery May 15th and is working on getting stronger, and in memory of baby Bryson who grew his wings on May 5th.
Please join me in voting to support ALL these precious ones & their families!
Today I am voting in honor of baby Ciaran who was born May 5th, had surgery May 15th and is working on getting stronger, and in memory of baby Bryson who grew his wings on May 5th.
Please join me in voting to support ALL these precious ones & their families!
Tuesday, May 17, 2011
May 17, 2011 - CHERUBS is competing in the Vivint Contest
(From Grandma's Facebook Page)
Everyday this week I am picking a name of a Cherub who is fighting for life to vote in honor of & a Cherub angel to vote in memory of.
For today I am voting in honor of 7 month baby Sofia who was doing well & stopped breathing unexpectedly & is fighting hard, & of course in memory of our beloved Jayden who would have been 15 months old on Thurs...
Everyday this week I am picking a name of a Cherub who is fighting for life to vote in honor of & a Cherub angel to vote in memory of.
For today I am voting in honor of 7 month baby Sofia who was doing well & stopped breathing unexpectedly & is fighting hard, & of course in memory of our beloved Jayden who would have been 15 months old on Thurs...
Thursday, May 12, 2011
May 12, 2011 - 2 More Cherubs Lost... :'(
(From Grandma's Facebook Page)
Grandma Posted:
Changing my profile in memory of 2 CDH Cherubs lost so far this week. Baby Bryson was born preemie & grew his wings on Sunday & baby Phoenix was lost on Monday after a hard fight against CDH.
Please keep both their families in your prayers. Fly High Little Ones!!!
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Grandma Posted:
Changing my profile in memory of 2 CDH Cherubs lost so far this week. Baby Bryson was born preemie & grew his wings on Sunday & baby Phoenix was lost on Monday after a hard fight against CDH.
Please keep both their families in your prayers. Fly High Little Ones!!!
Sunday, May 8, 2011
May 8, 2011 - Happy Mother's Day!
(From Grandma's Facebook Page)
May 8, 2011
Happy Mother's Day to my Mom (who put up with me all these years!) and my daughters L. & Alicia.
Thank you Mom for all you did, I could only hope to be a good 2nd to you.
L., you and I may have our issues, but I am still VERY proud of the mom that you are to B. & K.
Alicia, I am SO proud of the mommy you've been to Jayden. I know he is looking down on you proudly!
I Love You All!!! ♥♥♥
May 8, 2011
Happy Mother's Day to my Mom (who put up with me all these years!) and my daughters L. & Alicia.
Thank you Mom for all you did, I could only hope to be a good 2nd to you.
L., you and I may have our issues, but I am still VERY proud of the mom that you are to B. & K.
Alicia, I am SO proud of the mommy you've been to Jayden. I know he is looking down on you proudly!
I Love You All!!! ♥♥♥
Thursday, May 5, 2011
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