Wednesday, April 14, 2010

April 14, 2010 - Jayden's 1 month Angelversary

April 14, 2010 - (From CaringBridge Page)



Today is Jayden's 1 month Angelversary and oh how we do still miss him!

Alicia & Grandma Shelly took Jayden balloons, a new windmill (he & the wind pretty much beat up the old one) & a flower arrangement. Jayden & the wind immediately played with the balloons & Alicia enjoyed batting them back. :-) Monday will be his 2 month birthday & we will bring up fresh flowers then as the old ones have wilted.

The days are still hard for Alicia but she is pushing through. Her blot clotting problems are continuing to be an issue so prayers are appreciated as she and the doctors continue to try & find a level that will keep her from another dangerous blood clot. She can not even consider returning to work until the levels are under control.

For those who helped with funeral expenses the last of the thank you cards are going in the mail. I'm sorry they have been so slow going out but some days are very hard still. All additional funds that came in after expenses were paid are being saved for Jayden's headstone. Even though Alicia is going with the least expensive one ($650.00) it will still likely be mid to late summer to get funds to cover it. If she is able to get back to work it may be sooner.

We are praying for the families of Joshua C. who was barely hanging on & grew his weeks on Sunday as well as another Joshua who passed in March with Jayden & was buried this last weekend. We are also praying for 3 yr old Clodagh from Ireland who is having correction surgery & 14 day old Kinley who was doing beautifully, had her surgery & was doing very well & then contracted a potentially fatal infection, suffered damaged bowels & is now on ECMO fighting for life. Please join us in our prayers. Also don't forget to support "Save the Cherubs" at http://www.savethecherubs.org. All CDH affected deserve a chance to live & thrive.

Monday, April 12, 2010

April 12, 2010 - Joshua C...

April 12, 2010
(From Grandma's Facebook Page)
 
Please pray for the family of Joshua C from New Mexico who lost his battle with CDH last evening.

Sunday, April 4, 2010

April 4, 2010 - Missing Jayden at Easter...

April 4, 2010 8:35 pm 
(From CaringBridge Page)

Jayden is a "You Tube" star... kind of. 

The CDH awareness campaign launched the same week of Jayden's passing and they were putting together a video to go with the promotion. We did not expect they would have time to get him in but they did! 

He is included with over 700 other CDH survivors & non-surviving CDH affected individuals from babies to adult. As sad as we are at Jayden's passing if he can possible help spread the word about CDH & increase awareness then his memory will live on and hopefully help others. 


He is at 3:10 in the video but you will have to watch close as the pictures flash quickly. 

Feel free to forward it to your family & friends, link to your My Space & Facebook & Twitter. Help get the word out & Help Save the Cherubs!
It is Easter Sunday, the remembrance of the resurrection of Jesus resurrection (for those that are Christians) & chocolate and Easter Bunnies for others. For us it is a reminder of the promise of everlasting life in which we hope to see him again when we come to the time to go to the life beyond this one.

We lift up the other 3 families who lost babies to CDH in March & hope they find peace & healing and pray for those struggling to hang on.