Alicia is mom to baby Jayden. She currently volunteers for CHERUBS as a "Hospital Angel" supporting local families when their CDH'ers are in the hospital and wherever else they are needed. She also supports local Marfan awareness activities.
Shelly is grandma to baby Jayden. She currently volunteers for CHERUBS as an Oregon state Co-Rep, Hospital Angel & is on the Parental Advisory Board (CPAB) for the 2013-2014 term. She is also a telephone support volunteer for the Marfan Foundation (formerly the National Marfan Foundation - NMF).
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