Aug 13, 2013 - August 19th is coming up... Project Heal - Day of Hope

(From Grandma Pinwheel)

August 19th holds a very important significance to Alicia & I, as it has been a milestone day for us. 

On August 19, 2010, Jayden would have been exactly 6 months old... 

In 2011, 1-1/2 years, in 2012, 2-1/2 years.

And on August 19th, 2013, he would have been 3-1/2...  :'(

Alicia lost her son. I lost a grandson. It is the reality we must live with for the rest of our days.

The pain is less sharp as time goes on, but we will always carry it with us. Jayden is no longer here. Nothing we can do will change that.

We have found that reaching out to other grieving families lets us know we are not alone, and lets them know they are not alone. 

We can understand each other in ways others who have not been down this road can. 

We have reached out to others, and they have responded. We have paid his love forward & gotten so much in return. It will never fill the empty hole left in our hearts by his absence, but hopefully his spirit will live on through us & through them and in doing so, let others just starting this journey know, there is hope.

There are times that memories and emotions surface, bringing the experience back, but the experience is shaping us and giving us and those who walk this painful journey hope that we can find some sort of healing. And that is what the "Carly Marie - Project Heal" is all about. This will be our 3rd year participating. Every year the emotions are different, some tough and some comforting... and we are grateful for all of them. 

Join us & others around the world next week as we stand together for the "Day of Hope". #august19thdayofhope

Carly Marie Project Heal - April 19th "Day of Hope"

July 17, 2013 - Another New Angel Now Lies Near Jayden... :'(

(From Grandma's Facebook Page)

Up spending time with Jayden in the children's section, asking him to say some prayers for some fighting Cherubs, and saw he has a new playmate two rows over...  

Prayers for their family...

July 16, 2013 - Jayden, Please Be With a CDH Baby and her Mommy Today...

(From Grandma Pinwheel)

Every day 144 babies are born with CDH in the world, 1 baby every 10 minutes, and every 20 minutes a baby dies...

Very soon, another CDH baby will make her grand entrance.

She will fight hard, but in the end will she go home to her family, or home to eternity?

Please sweet Jayden, ask God to give her all the strength she needs to win this fight, as we know you have plenty of playmates already!

Fight little Cherub warrior! Fight!!!