May 19, 2010 (From CaringBridge Page)
Sorry we haven't added any entries for a while, a lot
has been going on in Grandma's work & Alicia's computer is still
down. Today is Jayden's 3 month birthday. Alicia wasn't able to make it
up to the cemetery last Friday for his 2 month angelversary as she was
ill again but we were able to go up today for a very long time.
We had a little miracle in that the weather here was horrible with heavy pounding rain & high winds breaking off trees all over the place most of the day but it was calm and only a little breezy with no rain the whole time we were up there. It's like God made the weather calm to help them have a good visit.
I am so proud of Alicia as she was incredible on Mother's Day at the family gathering. There were some sad times & tears looking at pictures & baby Jayden's castings of his feet & hands but she also laughed playing games and was silly with her cousins & their puppies. It truly seemed like a celebration of Jayden's life which is what we wanted.
Several other babies have been born with CDH since last month & unfortunately some of them not survived. We also have another family here in the Portland area expecting in a few months. Please keep all their families in your prayers.
Alicia is still hoping that after she gets a little further through the grieving process & she gets a better handle on her medical issues she really wants to reach out to other CDH parents. It is very important to her to do what she can to get the word out about this condition.
Jayden's video is finished but she is not ready to post it yet as it's too emotional still.
You can still see Jayden in the CHERUBS CDH awareness video at: http://www.youtube.com/watch?v=vTChMLy2EFk.
He & another child are at 3:10 in the video. He flashes by very quickly so watch closely. Please watch the whole video & spread it around as we would like to see it go viral. CHERUBS is such a worthy cause in need of support & education is the key to saving others the pain that we have endured.
We had a little miracle in that the weather here was horrible with heavy pounding rain & high winds breaking off trees all over the place most of the day but it was calm and only a little breezy with no rain the whole time we were up there. It's like God made the weather calm to help them have a good visit.
I am so proud of Alicia as she was incredible on Mother's Day at the family gathering. There were some sad times & tears looking at pictures & baby Jayden's castings of his feet & hands but she also laughed playing games and was silly with her cousins & their puppies. It truly seemed like a celebration of Jayden's life which is what we wanted.
Several other babies have been born with CDH since last month & unfortunately some of them not survived. We also have another family here in the Portland area expecting in a few months. Please keep all their families in your prayers.
Alicia is still hoping that after she gets a little further through the grieving process & she gets a better handle on her medical issues she really wants to reach out to other CDH parents. It is very important to her to do what she can to get the word out about this condition.
Jayden's video is finished but she is not ready to post it yet as it's too emotional still.
You can still see Jayden in the CHERUBS CDH awareness video at: http://www.youtube.com/watch?v=vTChMLy2EFk.
He & another child are at 3:10 in the video. He flashes by very quickly so watch closely. Please watch the whole video & spread it around as we would like to see it go viral. CHERUBS is such a worthy cause in need of support & education is the key to saving others the pain that we have endured.
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