Nov 19, 2010 - 9 Months Old...

(From Mommy's Facebook Page)

It's hard to believe 9 months ago today I brought my Jayden into this world. Maybe if he were here and I saw him grow everyday maybe it would feel real. But I guess I will never know.

I LOVE AND MISS YOU MY SON!!!!!!

Nov 19, 2010 - Please VOTE & Help "Save the Cherubs!"

(From Grandma's FB Page)

I know people are voting for animals, recycling, politics...all sorts of worthy causes on the Pepsi Refreshes Contest but WE HAVE LOST 5 BABIES TO CDH THIS WEEK!!!! This is not an abstract number. 5 babies who were members of our charity. They have parents, brothers & sisters. They have names; Heath, Libby, Ella, Anatasios & Lachlan.

Will you please care enough to go vote?

You can vote through Pepsi Refresh or our site at http://www.voteforcdh.org/ and you can also vote through the Pepsi Refresh Voting App (search for CHERUBS).

Yes, the site can be temperamental at times, but all the babies & children keep fighting the good fight, so don't you give up. If you get a connection error, keep trying. Still can get it through? Close your browser then open it again or try again later (but don't forget). Don't let Pepsi's technical issues make you give up!!!

Please don't send Jayden any more playmates in Heaven, he has plenty already. Support CHERUBS & help "Save the Cherubs!"

Nov 14, 2010 - 8 Months Gone...

(From Mommy's Facebook Page on Nov 13 & 14th)

Nov 13 - I have voted all 3 ways it's your turn! 

With the loss of Heath just days ago we are reminded again just how fast and how often CDH takes our little ones and I'm TIRED of it! 

Please click the link and vote for us and ALL the others we are helping.

        http://www.votesforkids.org/

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Nov 14 - 8 Months ago today I watched as my Son went back to God. 
Lord why did you take him and not me!!!! 

We lost 2 babes in the last week alone. 
Please keep voting and help us save baby's lives!

Nov 5, 2010 - Jayden Helps CHERUBS in the "Pepsi Refreshes" contest!

(From Grandma's Facebook Page)

CDH is the condition we lost my precious grandson Jayden to. 

The charity CHERUBS supports CDH families & is trying to win support and research funds to help families & find the cause of CDH in the "Pepsi Refreshes" contest. 

Please watch this video which includes Jayden at 1:18 & 7:05 minutes in & then vote EVERYDAY for the rest of Nov to help "Save the Cherubs!"

Vote to Help Babies Born With Congenital Diaphragmatic Hernia

Oct 31, 2010 - Halloween...

(From Mommy's Facebook Page)

I wish I could say happy Halloween to all, but all I keep thinking is how I will have to hear and maybe see (if I go downstairs) all the kids we will give candy to, and how my baby won't be in my arms as it happens. :'(

Oct 29, 2010 - Another Delay on the Headstone...

(From Grandma's Facebook Page)

I am bummed. We had to tell the cemetery today it will be another 4-6 months before we will have enough for Jayden's headstone. :-(

Oct 22, 2010 - Jayden is helping the CHERUBS Angel Ball!

Mommy & Grandma spent most of the summer picking up items to create two "Made in Oregon" theme gift baskets to be sold at the auction as part of the CHERUBS annual Angel Ball. 

A very big THANK YOU to Jayden's uncle "Squeaks" (Jeremy) in helping to pick the flavors! :-)

Auction Donations - Oregon Flavors - donated in memory of Jayden Scott Gilbert

We are thrilled to announce the following auction item for the 2010 Masquerading Angels Ball: An "Oregon Flavors" basket donated in memory of CDH cherub Jayden Scott Gilbert.

We had fun looking for things that would appeal to a wide audience. The Made in Oregon store was neat & "Moonstruck Chocolates", need we say more!!! :-)

Auction Donations - Taste of Oregon Basket - donated in memory of Jayden Scott Gilbert

We are thrilled to announce the following auction item for the 2010 Masquerading Angels Ball: A "Taste of Oregon" basket donated in memory of CDH cherub Jayden Scott  Gilbert. Donated by his and mother, Alicia Gilbert and grandmother, Shelly Moore.

Oct 20, 2010 - A little something for ALL parents who lost a child...

(From Mommy's Facebook Page)

A little something for ALL parents who lost a child.

I'm going to tell you something I hope you'll never have to know I'll tell you how a heart can break and tears can constantly flow.

I lost my baby boy you see, an angel in my eyes. God chose to take his hand one day and lead him to the skies but please do not forget my child. He was a person too and forever he will live inside of me and you. So please don't ever tell me that time will heal my pain because not even time can bring him back again. Just tell me he is happy in that land way up above he's snuggled in an angel's wings all wrapped in mommy's love.

To ALL the babes and children may you R.I.P. and to ALL their moms and dads I hope this helps you know you are not alone.

Oct 14, 2010 - 7 months ago today...

(From Mommy's Facebook Page)

7 months ago today at 4:01 pm my son grow his wings and returned to God's arms forever. *Cries so very hard* 

Whoever said it gets easier with time was ether lying or never been through it. 

R.I.P. my precious baby Jayden 

Mommy loves you ALWAYS!!!!!

Oct 1, 2010 - Please pray for Jayden's Mommy...

(From Grandma's Facebook Page)

Alicia's thyroid scan's is today, please pray for answers...

Sept 17, 2010 - Please VOTE!

(From Mommy's Facebook Page)

Please go vote and help us save these babes!!!! 

Sept 16, 2010 - Jayden's Memorial Tribute Video

(From Grandma's Facebook Page)

For those who missed the link earlier Jayden's memorial tribute video is up. 

Before you view it we suggest you get Kleenex & after please give your kids hugs (if you have them) & tell them you love them. 

We hope it does honor to Jayden's life & why we feel so passionate about helping CHERUBS.

Jayden's CDH Story 2/19/10 - 3/14/10

Sept 15, 2010 - 6 Months in Heaven...

 (From CaringBridge Page)

Tuesday was six months since Jayden grew his wings. We went up to visit & again were blessed with good weather. We were concerned his pinwheel might be down or broken & grandma has been looking for them but apparently they are seasonal & we can't fine one anywhere. Luckily it was still up & in decent shape & he and the wind were just twirling it away!

We were talking about how he'd likely have been an Oregon Duck fan (GO DUCKS!) & had been thinking of ways we could do a photo for the CHERUBS fundraisers & incorporate the Ducks in. What you see in the photos is what we came up with. The original picture is clearer; the CaringBridge upload kind of did a number on it. For those on Facebook it looks a little better there.

We also took a half dozen balloons up, 2 blue, 2 pink & 2 yellow of CHERUBS colors for a balloon release. Alicia wrote a note for Jayden & attached it to one of the blue ones & then released them all. The balloons are to honor Jayden & all the other CDH'ers, both angels & survivors.

Wednesday also would have been Jayden's Grandpa Scott's 46th birthday so we hope they were having a fun party together in Heaven. You might have noticed in the picture there is still no headstone. We are only at the halfway point so now we are thinking it will likely be tax refund next year probably around his birthday before we make our goal. It will get done, its just taking a bit longer than we hoped.

This last month presented a new stress for Alicia as baby Finely was born in the exact same room Jayden was & cared for in the exact same spot in the NICU Jayden was in, but after almost 3 long weeks fighting & avoiding ECMO she made it to surgery & is completely off all breathing support & learning to feed. This is what it is all about. This was the first baby (that we knew of) locally to go down our road & Alicia was very nervous as to how she was going to handle it if things turned bad, thankfully it did not. We hope it is a very long time before another baby has to go there again. We are keeping baby Finley in our prayers & look forward to when we can meet her & her amazing family.

August was the last month of the APX contest trying to win CHERUBS $100,000 for much needed funding. Alicia jumped in full speed trying to help win the grand prize. Although they took second place in the nation & won $30,000 against a very well organized group for a different medical condition it showed how strong this community is & she is proud to be a part of it. We are putting together Made in Oregon gift baskets to send to South Carolina be part of a fundraiser in October and another family here has contacted us about possibly doing a local fundraiser in the next 12-24 months. It will be SO awesome if it comes to pass. Another great way to honor Jayden’s memory.
A few months ago Grandma Shelly put together a video for Jayden of his CDH journey but it took quite a while for Alicia to be ready to let it go public. During the final push for APX she decided it was time. It is now up for all to see. Before you view it we suggest you get Kleenex & after please give your kids hugs & tell them you love them. Life is too short not to let them know.

Here is the link:
Jayden's CDH Story 2/19/10 - 3/14/10
http://www.youtube.com/watch?v=0fKsAsMS_ZA

The CHERUBS group is now in the running to possibly win more then $300,000 in additional grants & this time friends & family don't have to be on Facebook to vote as they can use a simple email address & password to log in & vote or can also text in their votes. Please vote in honor of Jayden & K. It cost you nothing except a few minutes every day & helps so many. Just this week 3 babies died that we know of and a teenager who re-herniated almost died a couple of weeks ago. This can be a lifelong condition that can strike any family. Please support all those who are affected by CDH. Visit www.voteforcdh.org to find out how help raise funds for research & support in the Pepsi Refreshes contest.

To all those who have supported Alicia & continue to encourage her, please know how touched & thankful she is for each & every one of you. We still don’t know why Jayden had to go as Alicia would MUCH rather have him here before anything else, but if she has to wait to see him until it is her time then your love & support have made her time apart from him just a little more bearable. WE LOVE YOU!

Sept 14, 2010 - It's Not Fair!!!

(From Mommy's Facebook Page)

6 months ago today my Son went back to God.
WHY DID HE HAVE TO GO????????
WHY NOT ME??????
HE WAS JUST A BABY.
ITS NOT FAIR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Sept 8, 2010 - I feel like my heart is dead...

(From Mommy's Facebook Page)

When will I stop wishing God took ME and not my son? I feel like my heart is dead. When will I know why he had to go?

Sometimes I feel like everywhere I look there are kids and babes just to make me feel worse like I have to be punished for letting him go.

LIFE IS NOT FAIR!!!!!!

Sept 5, 2010 - One of those "bad" days...

(From Mommy's Facebook Page)

 

Having one of those "bad" days today. I can't figure out why but I can't get my Jayden off my mind and I keep thinking of the whole letting him go thing play in my head over and over and just can't seem to let myself feel like I did the right thing! 

 

I MISS MY BABY!!!!!!!!!!!!!!!!!!

Aug 30, 2010 - Please vote for all those precious little ones...

(From Grandma's Facebook Page)

Only one day left for this month's Pepsi contests then some big stuff coming up in Sept.

Please vote for all those precious little ones & their families, especially for baby Finely here in Portland, baby Mattiaus from Winnipeg & baby Savannah from Florida who all had their surgeries in the last few days & are working on recovering & vote for baby Airynn also from Winnipeg to be induced on Tues & baby Heath from Texas due to be induced Sept 7th but could go anytime.

Help these & SO MANY OTHERS!

Aug 22, 2010 - Jayden's First Video...

[Note from Grandma: Although Jayden's video had been done for a few weeks, it was not until the final weeks of the APX contest when Alicia felt ready for it to go public.]

(From Mommy's Facebook Page)

This is a video telling the story of my Son before and after birth.
If you feel ANYTHING from watching this PLEASE look into CDH and help us stop it for good.

Jayden's CDH Story 2/19/10 - 3/14/10

Aug 21, 2010 - Wings to Fly...

(From Mommy's Facebook Page)

To ALL the CDH Angels (Including my son Jayden) I feel this video says what I believe they say as they grow their wings.

(R.I.P) my Son I LOVE YOU ALWAYS.

Wings to Fly ～ 翼をください （Music Video）[HD]

----------------------------------------------

Lyrics

~~~~~~
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky

If now, I could grant my wish
I'd wish to have those wings
Those wings just like the birds
That fly up in the air

So high up in the air
With feathers bright and fair
No wealth nor power can make
My heart filled with such joy

Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky

Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
I'd fly
With those wings to the sky

Aug 20, 2010 - Jayden's 6 Month Birthday

(From Mommy's Facebook Page)

My mom and I went up and saw Jayden yesterday for his 6 month birthday.

He is a strange baby........ We gave him a balloon, flowers, and a red toy car but instead of moving the balloon or flowers as always he just plays with his pinwheels so easily amused, LOL.