Friday, January 24, 2014

Jan 24, 2014 - WOW!!!! Just WOW!!!

(Mommy Alicia & Grandma Shelly)

Sometimes things happen we can't explain. And sometimes they happen at just the right time. We think today is one of those days....

It is coming up on 4 years since Jayden was born & passed into Heaven not long after that. Having just come through the holidays (which are always emotional), we approach Valentine's Day (another emotional point) and immediately after that his birth date & angelversary. 

After 4 years the pain is still deep. Perhaps it always will be. We busy ourselves with activities, responsibilities and distractions, but when it's quiet and it's just ourselves, the pain is still there. This last couple of weeks have seemed to reinforce that pain. It comes in waves, and lately those waves have seemed particularly high, so it seems just the time Alicia's "Lil' Man" would pull something that we feel is nothing other than miraculous!

Grandma had a particularly bad day yesterday (Thursday) and Alicia has been having a rough week with her ongoing medical issues, so by last night we were pretty wiped out, physically & emotionally. Grandma checked her email one more time before bed and found an email that changed everything. Back to that in a minute....

Last year we helped plan the CHERUBS 2nd annual Parade of Cherubs in Portland, Oregon at Legacy Emanuel / Randall Children's Hospital. During that time we met with other CDH families, held an Information Fair, and gathered with our Cherub survivors and fellow angel families, paraded around the hospital grounds to raise CDH awareness.

Here is the video of the event:

2nd Annual "Parade of Cherubs" in Portland, Oregon 
April 19, 2013




If you watch in the last few frames, we "sent" balloons to our Cherubs who were lost to CDH. Each angel family like ours got their own balloon to label and the rest went to survivors to write on (although we can't remember if a couple of the survivors had to share putting their names on a balloon or two). 

Here is a picture of the one Alicia did for Jayden...
























Remember, this was April 19th, 2013... :-)

>>> Fast forward to last night (Thursday)...

The email that turned our frown into smiles, & kept it there all day today...

Grandma was very tired, but went to check her email 1 more time before bed. In her inbox was the usual, except for 1 item, a comment notification from YouTube on Jayden's memorial video from 3 years ago. 














Shock, disbelief, amazement! Immediately grandma went to show it to Alicia & they were in shock together! WOW! Just WOW!!! Of COURSE Mommy would like it back!

Grandma couldn't reply on mobile & had to wait until morning, and as soon as were able to get online we replied, and were amazed again!

We'd pretty much figured out by then it had to be the balloon from the parade, but how far had it gone??? Neither had ever heard of Post, Oregon, so we had to look it up on the map... 174 miles (give or take) from Portland! There was a steady wind that day, so it likely hit an updraft pretty quickly & sailed on an upper air current. 



When we finally started talking to Sandy we found out her husband was in the middle of nowhere hunting, in a place where normally no one would go, so for it to be there & cross Brent's path... well apparently powers beyond us decided it was time for it to be found! She said it is also in remarkably good shape. It was her & her friend Tami who searched the web in hopes of finding who it belonged too. THANK YOU to all 3 of them!!

But the story doesn't end here. All this is transpiring on Jayden's great-grandpa's birthday. When we called to wish him Happy Birthday & told them the story they were amazed too!

And even more! Brent, Sandy's husband SHARES the same birth date as Jayden...and one of Sandy's children was born in the same hospital one of Alicia's siblings were in Billings, MT, many years before... Getting the shivers yet?!? 

#TwilghtZoneMusicPlays


We have set up a time & will bring the balloon home this weekend, and if all goes well, hopefully get to visit this weekend with 2 families at Randall who's babies are fighting the same battle Jayden fought so bravely almost 4 years ago... <3

Jayden, in a sense, is coming home to Mommy... :-)

Looking forward to the rest of the weekend!

(P.S.) If you are an Oregon or SW Washington CDH family and have suggestions for this year's CDH Awareness events for April, please let us know as we are meeting on Sunday with our fellow planners to firm things up. 

If you are a CDH family in other areas & want to see what is going on in your area (and this is worldwide) keep checking back with CHERUBS!

CHERUBS Main page: http://www.cdhsupport.org

CHERUBS Facebook Page: http://www.facebook.com/cdhsupport




Tuesday, August 13, 2013

Aug 13, 2013 - August 19th is coming up... Project Heal - Day of Hope

(From Grandma Pinwheel)

August 19th holds a very important significance to Alicia & I, as it has been a milestone day for us. 

On August 19, 2010, Jayden would have been exactly 6 months old... 

In 2011, 1-1/2 years, in 2012, 2-1/2 years.

And on August 19th, 2013, he would have been 3-1/2...  :'(

Alicia lost her son. I lost a grandson. It is the reality we must live with for the rest of our days.

The pain is less sharp as time goes on, but we will always carry it with us. Jayden is no longer here. Nothing we can do will change that.

We have found that reaching out to other grieving families lets us know we are not alone, and lets them know they are not alone. 

We can understand each other in ways others who have not been down this road can. 

We have reached out to others, and they have responded. We have paid his love forward & gotten so much in return. It will never fill the empty hole left in our hearts by his absence, but hopefully his spirit will live on through us & through them and in doing so, let others just starting this journey know, there is hope.

There are times that memories and emotions surface, bringing the experience back, but the experience is shaping us and giving us and those who walk this painful journey hope that we can find some sort of healing. And that is what the "Carly Marie - Project Heal" is all about. This will be our 3rd year participating. Every year the emotions are different, some tough and some comforting... and we are grateful for all of them. 

Join us & others around the world next week as we stand together for the "Day of Hope". #august19thdayofhope



DayofHope





Wednesday, July 17, 2013

July 17, 2013 - Another New Angel Now Lies Near Jayden... :'(

(From Grandma's Facebook Page)

Up spending time with Jayden in the children's section, asking him to say some prayers for some fighting Cherubs, and saw he has a new playmate two rows over...  

Prayers for their family...

Tuesday, July 16, 2013

July 16, 2013 - Jayden, Please Be With a CDH Baby and her Mommy Today...

(From Grandma Pinwheel)

Every day 144 babies are born with CDH in the world, 1 baby every 10 minutes, and every 20 minutes a baby dies...

Very soon, another CDH baby will make her grand entrance.

She will fight hard, but in the end will she go home to her family, or home to eternity?

Please sweet Jayden, ask God to give her all the strength she needs to win this fight, as we know you have plenty of playmates already!

Fight little Cherub warrior! Fight!!!

Wednesday, August 17, 2011

Aug 2011 - July 16, 2013 - UNDER CONSTRUCTION!

We are slowly getting these entries added in. 

Please be patient & check back often for updates!

Thanks!
Alicia & Shelly

Thursday, August 11, 2011

August 11, 2011 - From a CDH family friend

Tagged to Grandma's Facebook page

This has been such a terrible month for CHERUBS. Babies Parker, Conley, Grace, Madelyn, Jeremy, Mattiaus, Adriel, Miles and now Hector, may you rest in peace with all the breaths you need and the wings to fly as fast as you want. Please vote...we only have a short time left and desperately need the support of our family and friends.  :'(

Sunday, July 31, 2011

July 31, 2011 - Decking Out My Car in Memory Jayden

From Mommy's Facebook Page

It's my little family on my new car.















I still want more CDH stuff on my car LOL.





















Tuesday, July 19, 2011

July 19, 2011 - 17 Months Old...

From Mommy's Facebook Page

Going to see my Jayden now. Today is his 17 month birthday. 

I can't believe it's been 17 months since we welcomed my perfect baby into this world. I don't know how I will handle next month as then he will be a year and a half old. 

OH MY JAYDEN, HOW I MISS YOU SO!
~~~~~~~~~~~~~~~~~~~~~



















HAPPY 17 Month BIRTHDAY my Lil' Man! 
MOMMY MISSES YOU SO MUCH! 


Thursday, July 14, 2011

July 14, 2011 - 16 months Since Jayden Grew His Wings...

From Mommy's Facebook Page





















Well he is a boy. 
You know what they say about boys and cars. Lol. 

Monday, July 4, 2011

July 4, 2011 - Second 4th of July for Jayden in Heaven...

From Mommy's Facebook Page

This may be my 2nd 4th without my son Jayden, but to me it is still as painful as the 1st! 

CDH took my SON & ANY chance at a 1st, let alone ANY 4th of July with HIM & ME!! I WILL NEVER FORGIVE GOD FOR TAKING THAT AND HIM AWAY FROM ME!!!! 

Sunday, June 19, 2011

June 19, 2011 - Please VOTE!

From Mommy's Facebook Page

June 19, 2011

There are moments in life when you wish you could bring someone down from heaven... and spend the day with them just one more time, kiss them goodbye or hear their voice again. 

~~~~~~~~~~~~~~~~~~~~~~

16 Months ago today I gave birth to the most BEAUTIFUL baby boy ever! And just 23 DAYS later I had to say goodbye with him in my arms! 

NO mom OR dad should have to say goodbye to their baby. 

PLEASE go VOTE and help me save other moms and dads from having to say goodbye like I had to do. (Remember this could be YOUR baby too!!!!!!!)

Please help me give my son LOTS of votes in his name and help me show him he will never be forgotten or left behind! Lets help ROCK the votes and get the grand prize so we can do the research and TRULY help these babes!









Monday, June 6, 2011

June 6, 2011 - AMAZING women!!

From Grandma's Facebook Page

AMAZING women... 

One has been in labor for 25 hours and will be having a c-section to deliver her baby who will be born with CDH. 

The other just lost her daughter to CDH 1 month after she was born. 

The amazing part to this is that through being in labor and grieving, they are pushing hard for votes for CHERUBS! 

It's people with that kind of dedication that can help win funds for CDH research!

Thursday, June 2, 2011

June 2, 2011 - Another Cherub Lost

From Grandma's Facebook Page

Changing my profile picture in memory of baby Penelope who lost her battle against CDH today. Fly high little angel! :'(

Tuesday, May 31, 2011

May 31, 2011 - Cherubs Lost in May 2011

Please pray for the families of all these Cherubs lost in May... :'(

♥ Bryson ♥ Phoenix ♥ Kellan ♥ 

Sunday, May 29, 2011

May 29, 2011 - CDH is "Hinted" at in Local Hospital's Video!

(From Mommy's Facebook Page)

Even just the few seconds they said it and the fact they only said Congenital Diaphragmatic and didn't say Hernia we know they ARE talking about CDH and now with just this SMALL bit of spreading the word I see it as the 1st step to FINALLY get the word out and 1 step closer to ENDING CDH for GOOD!



Legacy Health Children's Services