Jayden was very spoiled like any baby should be!
We hope he enjoyed looking at all his gifts...
We hope he enjoyed looking at all his gifts...
Saturday, December 25, 2010
Sunday, December 19, 2010
Dec 19, 2010 - Mommy Loves You Always!
(From Mommy's Facebook Page...)
9
Months ago today after giving the OK I held my son as he slowly died in
my arms. Not a day goes by I don't wish it was me and feel like I made
the wrong choice. If only I could see him again and hear him say I did
the right thing maybe it would not hurt SO bad. (R.I.P. my perfect baby
boy)
MOMMY LOVES YOU ALWAYS!
Monday, November 29, 2010
Friday, November 19, 2010
Nov 19, 2010 - 9 Months Old...
(From Mommy's Facebook Page)
It's hard to believe 9 months ago today I brought my Jayden into this world. Maybe if he were here and I saw him grow everyday maybe it would feel real. But I guess I will never know.
I LOVE AND MISS YOU MY SON!!!!!!
Nov 19, 2010 - Please VOTE & Help "Save the Cherubs!"
(From Grandma's FB Page)
I know people are voting for animals, recycling, politics...all sorts of worthy causes on the Pepsi Refreshes Contest but WE HAVE LOST 5 BABIES TO CDH THIS WEEK!!!! This is not an abstract number. 5 babies who were members of our charity. They have parents, brothers & sisters. They have names; Heath, Libby, Ella, Anatasios & Lachlan.
Will you please care enough to go vote?
You can vote through Pepsi Refresh or our site at http://www.voteforcdh.org/ and you can also vote through the Pepsi Refresh Voting App (search for CHERUBS).
Yes, the site can be temperamental at times, but all the babies & children keep fighting the good fight, so don't you give up. If you get a connection error, keep trying. Still can get it through? Close your browser then open it again or try again later (but don't forget). Don't let Pepsi's technical issues make you give up!!!
Please don't send Jayden any more playmates in Heaven, he has plenty already. Support CHERUBS & help "Save the Cherubs!"
Sunday, November 14, 2010
Nov 14, 2010 - 8 Months Gone...
(From Mommy's Facebook Page on Nov 13 & 14th)
Nov 13 - I have voted all 3 ways it's your turn!
With the loss of Heath just days ago we are reminded again just how fast and how often CDH takes our little ones and I'm TIRED of it!
Please click the link and vote for us and ALL the others we are helping.
http://www.votesforkids.org/~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Nov 14 - 8 Months ago today I watched as my Son went back to God.
Lord why did you take him and not me!!!!
We lost 2 babes in the last week alone.
Please keep voting and help us save baby's lives!
Friday, November 5, 2010
Nov 5, 2010 - Jayden Helps CHERUBS in the "Pepsi Refreshes" contest!
(From Grandma's Facebook Page)
CDH is the condition we lost my precious grandson Jayden to.
The charity CHERUBS supports CDH families & is trying to win support and research funds to help families & find the cause of CDH in the "Pepsi Refreshes" contest.
Please watch this video which includes Jayden at 1:18 & 7:05 minutes in & then vote EVERYDAY for the rest of Nov to help "Save the Cherubs!"
CDH is the condition we lost my precious grandson Jayden to.
The charity CHERUBS supports CDH families & is trying to win support and research funds to help families & find the cause of CDH in the "Pepsi Refreshes" contest.
Please watch this video which includes Jayden at 1:18 & 7:05 minutes in & then vote EVERYDAY for the rest of Nov to help "Save the Cherubs!"
Vote to Help Babies Born With Congenital Diaphragmatic Hernia
Sunday, October 31, 2010
Oct 31, 2010 - Halloween...
(From Mommy's Facebook Page)
I wish I could say happy Halloween to all, but all I keep thinking is how I will have to hear and maybe see (if I go downstairs) all the kids we will give candy to, and how my baby won't be in my arms as it happens. :'(
Friday, October 29, 2010
Oct 29, 2010 - Another Delay on the Headstone...
(From Grandma's Facebook Page)
I am bummed. We had to tell the cemetery today it will be another 4-6 months before we will have enough for Jayden's headstone. :-(
Friday, October 22, 2010
Oct 22, 2010 - Jayden is helping the CHERUBS Angel Ball!
Mommy & Grandma spent most of the summer picking up items to create two "Made in Oregon" theme gift baskets to be sold at the auction as part of the CHERUBS annual Angel Ball.
A very big THANK YOU to Jayden's uncle "Squeaks" (Jeremy) in helping to pick the flavors! :-)
We had fun looking for things that would appeal to a wide audience. The Made in Oregon store was neat & "Moonstruck Chocolates", need we say more!!! :-)
A very big THANK YOU to Jayden's uncle "Squeaks" (Jeremy) in helping to pick the flavors! :-)
We had fun looking for things that would appeal to a wide audience. The Made in Oregon store was neat & "Moonstruck Chocolates", need we say more!!! :-)
Wednesday, October 20, 2010
Oct 20, 2010 - A little something for ALL parents who lost a child...
(From Mommy's Facebook Page)
A little something for ALL parents who lost a child.
I'm going to tell you something I hope you'll never have to know I'll tell you how a heart can break and tears can constantly flow.
I lost my baby boy you see, an angel in my eyes. God chose to take his hand one day and lead him to the skies but please do not forget my child. He was a person too and forever he will live inside of me and you. So please don't ever tell me that time will heal my pain because not even time can bring him back again. Just tell me he is happy in that land way up above he's snuggled in an angel's wings all wrapped in mommy's love.
To ALL the babes and children may you R.I.P. and to ALL their moms and dads I hope this helps you know you are not alone.
Thursday, October 14, 2010
Oct 14, 2010 - 7 months ago today...
(From Mommy's Facebook Page)
7
months ago today at 4:01 pm my son grow his wings and returned to God's
arms forever. *Cries so very hard*
Whoever said it gets easier with time
was ether lying or never been through it.
R.I.P. my precious baby Jayden
R.I.P. my precious baby Jayden
Mommy loves you ALWAYS!!!!!
Friday, October 1, 2010
Oct 1, 2010 - Please pray for Jayden's Mommy...
(From Grandma's Facebook Page)
Alicia's thyroid scan's is today, please pray for answers...
Friday, September 17, 2010
Sept 17, 2010 - Please VOTE!
(From Mommy's Facebook Page)
Please go vote and help us save these babes!!!!
Thursday, September 16, 2010
Sept 16, 2010 - Jayden's Memorial Tribute Video
(From Grandma's Facebook Page)
For those who missed the link earlier Jayden's memorial tribute video is up.
For those who missed the link earlier Jayden's memorial tribute video is up.
Before you view it we suggest you get Kleenex & after please give your kids hugs (if you have them) & tell them you love them.
We hope it does honor to Jayden's life & why we feel so passionate about helping CHERUBS.
Jayden's CDH Story 2/19/10 - 3/14/10
Wednesday, September 15, 2010
Sept 15, 2010 - 6 Months in Heaven...
(From CaringBridge Page)
Tuesday was six months since Jayden grew his wings.
We went up to visit & again were blessed with good weather. We were
concerned his pinwheel might be down or broken & grandma has been
looking for them but apparently they are seasonal & we can't fine
one anywhere. Luckily it was still up & in decent shape & he and
the wind were just twirling it away!
We were talking about how he'd likely have been an Oregon Duck fan (GO DUCKS!) & had been thinking of ways we could do a photo for the CHERUBS fundraisers & incorporate the Ducks in. What you see in the photos is what we came up with. The original picture is clearer; the CaringBridge upload kind of did a number on it. For those on Facebook it looks a little better there.
We also took a half dozen balloons up, 2 blue, 2 pink & 2 yellow of CHERUBS colors for a balloon release. Alicia wrote a note for Jayden & attached it to one of the blue ones & then released them all. The balloons are to honor Jayden & all the other CDH'ers, both angels & survivors.
Wednesday also would have been Jayden's Grandpa Scott's 46th birthday so we hope they were having a fun party together in Heaven. You might have noticed in the picture there is still no headstone. We are only at the halfway point so now we are thinking it will likely be tax refund next year probably around his birthday before we make our goal. It will get done, its just taking a bit longer than we hoped.
This last month presented a new stress for Alicia as baby Finely was born in the exact same room Jayden was & cared for in the exact same spot in the NICU Jayden was in, but after almost 3 long weeks fighting & avoiding ECMO she made it to surgery & is completely off all breathing support & learning to feed. This is what it is all about. This was the first baby (that we knew of) locally to go down our road & Alicia was very nervous as to how she was going to handle it if things turned bad, thankfully it did not. We hope it is a very long time before another baby has to go there again. We are keeping baby Finley in our prayers & look forward to when we can meet her & her amazing family.
August was the last month of the APX contest trying to win CHERUBS $100,000 for much needed funding. Alicia jumped in full speed trying to help win the grand prize. Although they took second place in the nation & won $30,000 against a very well organized group for a different medical condition it showed how strong this community is & she is proud to be a part of it. We are putting together Made in Oregon gift baskets to send to South Carolina be part of a fundraiser in October and another family here has contacted us about possibly doing a local fundraiser in the next 12-24 months. It will be SO awesome if it comes to pass. Another great way to honor Jayden’s memory.
A few months ago Grandma Shelly put together a video for Jayden of his CDH journey but it took quite a while for Alicia to be ready to let it go public. During the final push for APX she decided it was time. It is now up for all to see. Before you view it we suggest you get Kleenex & after please give your kids hugs & tell them you love them. Life is too short not to let them know.
Here is the link:
Jayden's CDH Story 2/19/10 - 3/14/10
http://www.youtube.com/watch?v=0fKsAsMS_ZA
The CHERUBS group is now in the running to possibly win more then $300,000 in additional grants & this time friends & family don't have to be on Facebook to vote as they can use a simple email address & password to log in & vote or can also text in their votes. Please vote in honor of Jayden & K. It cost you nothing except a few minutes every day & helps so many. Just this week 3 babies died that we know of and a teenager who re-herniated almost died a couple of weeks ago. This can be a lifelong condition that can strike any family. Please support all those who are affected by CDH. Visit www.voteforcdh.org to find out how help raise funds for research & support in the Pepsi Refreshes contest.
To all those who have supported Alicia & continue to encourage her, please know how touched & thankful she is for each & every one of you. We still don’t know why Jayden had to go as Alicia would MUCH rather have him here before anything else, but if she has to wait to see him until it is her time then your love & support have made her time apart from him just a little more bearable. WE LOVE YOU!
Tuesday, September 14, 2010
Sept 14, 2010 - It's Not Fair!!!
(From Mommy's Facebook Page)
6 months ago today my Son went back to God.
WHY DID HE HAVE TO GO????????
WHY NOT ME??????
HE WAS JUST A BABY.
ITS NOT FAIR!!!!!!!!!!!!!!!!!!!!!!!!!!
Wednesday, September 8, 2010
Sept 8, 2010 - I feel like my heart is dead...
(From Mommy's Facebook Page)
When
will I stop wishing God took ME and not my son? I feel like my heart is
dead. When will I know why he had to go?
Sometimes I feel like everywhere I look there are kids and babes just to make me feel worse like I have to be punished for letting him go.
LIFE IS NOT FAIR!!!!!!
Sometimes I feel like everywhere I look there are kids and babes just to make me feel worse like I have to be punished for letting him go.
LIFE IS NOT FAIR!!!!!!
Sunday, September 5, 2010
Sept 5, 2010 - One of those "bad" days...
(From Mommy's Facebook Page)
Having
one of those "bad" days today. I can't figure out why but I can't get
my Jayden off my mind and I keep thinking of the whole letting him go
thing play in my head over and over and just can't seem to let myself
feel like I did the right thing!
I MISS MY BABY!!!!!!!!!!!!!!!!!!
Monday, August 30, 2010
Aug 30, 2010 - Please vote for all those precious little ones...
(From Grandma's Facebook Page)
Only one day left for this month's Pepsi contests then some big stuff coming up in Sept.
Please vote for all those precious little ones & their families, especially for baby Finely here in Portland, baby Mattiaus from Winnipeg & baby Savannah from Florida who all had their surgeries in the last few days & are working on recovering & vote for baby Airynn also from Winnipeg to be induced on Tues & baby Heath from Texas due to be induced Sept 7th but could go anytime.
Help these & SO MANY OTHERS!
Only one day left for this month's Pepsi contests then some big stuff coming up in Sept.
Please vote for all those precious little ones & their families, especially for baby Finely here in Portland, baby Mattiaus from Winnipeg & baby Savannah from Florida who all had their surgeries in the last few days & are working on recovering & vote for baby Airynn also from Winnipeg to be induced on Tues & baby Heath from Texas due to be induced Sept 7th but could go anytime.
Help these & SO MANY OTHERS!
Sunday, August 22, 2010
Aug 22, 2010 - Jayden's First Video...
[Note from Grandma: Although Jayden's video had been done for a few weeks, it was not until the final weeks of the APX contest when Alicia felt ready for it to go public.]
(From Mommy's Facebook Page)
If you feel ANYTHING from watching this PLEASE look into CDH and help us stop it for good.
Jayden's CDH Story 2/19/10 - 3/14/10
Saturday, August 21, 2010
Aug 21, 2010 - Wings to Fly...
(From Mommy's Facebook Page)
To ALL the CDH Angels (Including my son Jayden) I feel this video says what I believe they say as they grow their wings.
(R.I.P) my Son I LOVE YOU ALWAYS.
Wings to Fly ～ 翼をください （Music Video）[HD]
----------------------------------------------
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
If now, I could grant my wish
I'd wish to have those wings
Those wings just like the birds
That fly up in the air
So high up in the air
With feathers bright and fair
No wealth nor power can make
My heart filled with such joy
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
I'd fly
With those wings to the sky
To ALL the CDH Angels (Including my son Jayden) I feel this video says what I believe they say as they grow their wings.
(R.I.P) my Son I LOVE YOU ALWAYS.
Wings to Fly ～ 翼をください （Music Video）[HD]
----------------------------------------------
Lyrics
~~~~~~Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
If now, I could grant my wish
I'd wish to have those wings
Those wings just like the birds
That fly up in the air
So high up in the air
With feathers bright and fair
No wealth nor power can make
My heart filled with such joy
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
I'd fly
With those wings to the sky
Friday, August 20, 2010
Aug 20, 2010 - Jayden's 6 Month Birthday
(From Mommy's Facebook Page)
My
mom and I went up and saw Jayden yesterday for his 6 month birthday.
He is a strange baby........ We gave him a balloon, flowers, and a red toy car but instead of moving the balloon or flowers as always he just plays with his pinwheels so easily amused, LOL.
Monday, July 19, 2010
July 19, 2010 - Jayden at 5 Months Old...
(From Grandma's Facebook Page)
Alicia & I had a nice visit with Jayden today. Little stinker kept waiting until Grandma's back was turned to spin his pinwheels which made Alicia laugh hysterically! Also got to decorate my niece's headstone as she would have been 16 year old on the 20th (lost to SIDS). Fly high Jayden & Alex!!!
Please keep little Oz & his family in your prayers as he will be delivered tomorrow by C-Section to start his CDH battle in the outside world.
Alicia & I had a nice visit with Jayden today. Little stinker kept waiting until Grandma's back was turned to spin his pinwheels which made Alicia laugh hysterically! Also got to decorate my niece's headstone as she would have been 16 year old on the 20th (lost to SIDS). Fly high Jayden & Alex!!!
Please keep little Oz & his family in your prayers as he will be delivered tomorrow by C-Section to start his CDH battle in the outside world.
Wednesday, July 14, 2010
July 14, 2010 - You are always in mommy's heart...
(From Mommy's Facebook Page)
4
months ago today I had to let my Angel go back to god. I send hugs and
prayers to all CDH families.
My mom and I will be going up to see him and place flowers for him later today. Right now I'm really just NUMB.
My mom and I will be going up to see him and place flowers for him later today. Right now I'm really just NUMB.
Jayden you are always in mommy's heart.
Monday, July 12, 2010
July 12, 2010 - Vote for CHERUBS in Pepsi Refresh!
(From Mommy's Facebook Page)
Vote for CHERUBS in memory of Shane in the Pepsi Refresh contest!!
Monday, July 5, 2010
July 5, 2010 - Missing Mommy on Her Birthday
(From Grandma's Facebook Page)
Today is Mommy's birthday so we are gonna go out with her for a while to do stuff since I'm off work today.
In honor of Jayden's mommy's birthday & in Jayden’s memory I encourage everyone to vote in several contests to raise funds for several worthy CDH related charities. Every 10 minutes a baby is born with CDH of which 50% do not survive including our little Jayden.
Click on the link to learn what charities NEED YOUR HELP!
http://cdhsupport.blogspot.com/2010/06/cdh-charity-cherubs-needs-votes-in-apx.html
Wednesday, June 30, 2010
June 30, 2010 - VOTE for CDH in Chase Community Giving
June 30, 2010 - (via Mommy's FB page)
Dr. Kays "Real Hope for CDH" is competing in "Chase Community Giving"
Tuesday, June 15, 2010
June 2010 - CHERUBS is in the APX Contest!
In June 2010, Mommy & Grandma joined in supporting CHERUBS in the APX Charity Contest to try & help CHERUBS to win $100,000!
Tuesday, June 1, 2010
June 1, 2010 - Memorial Day 2010
June 1, 2010 - (From CaringBridge Page)
This weekend was Memorial Day weekend and Alicia,
Grandma Shelly and Grandpa Daniel & Great Grandpa & Grandma
Moore all made it up to see Jayden & the rest of the extended family
at the cemetery. It was bittersweet in that it was the first time Great
Grandpa & Grandma got to see Jayden as they were on vacation when
he was here on earth, but it was good that we got to personally show
them where he rested (not that it would have been hard to tell by all
the decorations!) Jayden was thrilled to get new balloons but was a
little naughty & kept trying to get them caught on the neighbor's
flowers.
Alicia is slowly doing better physically and they have
started weaning her off the blood thinners. The emotion side is tougher
as just an outing to the store with a lot of babies & small children
sets off a ton of emotion. A lot of that is just going to just take
time to heal. She hopes to be looking for work soon. She is also hopeful
to start doing more with the CDH community as there are still so many
babies being lost, 3 in the last week alone.
We may not update for a while as Grandma has a medical procedure coming up & we both have some summer projects that will keep us busy but please know Alicia is so thankful for her family & freinds and all the love & support you have shown. We LOVE you all!!
We may not update for a while as Grandma has a medical procedure coming up & we both have some summer projects that will keep us busy but please know Alicia is so thankful for her family & freinds and all the love & support you have shown. We LOVE you all!!
Wednesday, May 19, 2010
May 19, 2010 - Jayden would be 3 months old...
May 19, 2010 (From CaringBridge Page)
Sorry we haven't added any entries for a while, a lot
has been going on in Grandma's work & Alicia's computer is still
down. Today is Jayden's 3 month birthday. Alicia wasn't able to make it
up to the cemetery last Friday for his 2 month angelversary as she was
ill again but we were able to go up today for a very long time.
We had a little miracle in that the weather here was horrible with heavy pounding rain & high winds breaking off trees all over the place most of the day but it was calm and only a little breezy with no rain the whole time we were up there. It's like God made the weather calm to help them have a good visit.
I am so proud of Alicia as she was incredible on Mother's Day at the family gathering. There were some sad times & tears looking at pictures & baby Jayden's castings of his feet & hands but she also laughed playing games and was silly with her cousins & their puppies. It truly seemed like a celebration of Jayden's life which is what we wanted.
Several other babies have been born with CDH since last month & unfortunately some of them not survived. We also have another family here in the Portland area expecting in a few months. Please keep all their families in your prayers.
Alicia is still hoping that after she gets a little further through the grieving process & she gets a better handle on her medical issues she really wants to reach out to other CDH parents. It is very important to her to do what she can to get the word out about this condition.
Jayden's video is finished but she is not ready to post it yet as it's too emotional still.
You can still see Jayden in the CHERUBS CDH awareness video at: http://www.youtube.com/watch?v=vTChMLy2EFk.
He & another child are at 3:10 in the video. He flashes by very quickly so watch closely. Please watch the whole video & spread it around as we would like to see it go viral. CHERUBS is such a worthy cause in need of support & education is the key to saving others the pain that we have endured.
We had a little miracle in that the weather here was horrible with heavy pounding rain & high winds breaking off trees all over the place most of the day but it was calm and only a little breezy with no rain the whole time we were up there. It's like God made the weather calm to help them have a good visit.
I am so proud of Alicia as she was incredible on Mother's Day at the family gathering. There were some sad times & tears looking at pictures & baby Jayden's castings of his feet & hands but she also laughed playing games and was silly with her cousins & their puppies. It truly seemed like a celebration of Jayden's life which is what we wanted.
Several other babies have been born with CDH since last month & unfortunately some of them not survived. We also have another family here in the Portland area expecting in a few months. Please keep all their families in your prayers.
Alicia is still hoping that after she gets a little further through the grieving process & she gets a better handle on her medical issues she really wants to reach out to other CDH parents. It is very important to her to do what she can to get the word out about this condition.
Jayden's video is finished but she is not ready to post it yet as it's too emotional still.
You can still see Jayden in the CHERUBS CDH awareness video at: http://www.youtube.com/watch?v=vTChMLy2EFk.
He & another child are at 3:10 in the video. He flashes by very quickly so watch closely. Please watch the whole video & spread it around as we would like to see it go viral. CHERUBS is such a worthy cause in need of support & education is the key to saving others the pain that we have endured.
Thursday, May 13, 2010
May 13, 2010 - Save The Cherubs!
(From Grandma's Facebook Page)
Changing my profile to remember my grandson Jayden who grew his cherub angel wings 2 months ago tomorrow (May 14th) from complications of his Congenital Diaphragmatic Hernia (CDH).
Please pray for healing for Alicia as she works though her grief and as she continues to battle many medical problems resulting from her difficult pregnancy.
A great way to honor Jayden’s memory is to spread awareness about CDH. Every 10 minutes a baby is born with CDH resulting in a half million babies born since 2000 of which 50% do not survive including our little Jayden.
Learn more at "Save The Cherubs", Raising Awareness of Congenital Diaphragmatic Hernia
http://www.savethecherubs.org/
Changing my profile to remember my grandson Jayden who grew his cherub angel wings 2 months ago tomorrow (May 14th) from complications of his Congenital Diaphragmatic Hernia (CDH).
Please pray for healing for Alicia as she works though her grief and as she continues to battle many medical problems resulting from her difficult pregnancy.
A great way to honor Jayden’s memory is to spread awareness about CDH. Every 10 minutes a baby is born with CDH resulting in a half million babies born since 2000 of which 50% do not survive including our little Jayden.
Learn more at "Save The Cherubs", Raising Awareness of Congenital Diaphragmatic Hernia
http://www.savethecherubs.org/
Monday, May 10, 2010
May 10, 2010 - Day After Mother's Day
(From Grandma's Facebook Page)
Pretty happy how the family gathering went yesterday at my in-laws. There were some sad times & tears looking at baby Jayden's pictures and castings of his feet & hands but some happy times too when Alicia was with playing with the puppies & playing games with family.
I wish my son didn't have to work but was good to talk to him.
Pretty happy how the family gathering went yesterday at my in-laws. There were some sad times & tears looking at baby Jayden's pictures and castings of his feet & hands but some happy times too when Alicia was with playing with the puppies & playing games with family.
I wish my son didn't have to work but was good to talk to him.
Wednesday, April 14, 2010
April 14, 2010 - Jayden's 1 month Angelversary
April 14, 2010 - (From CaringBridge Page)
Today is Jayden's 1 month Angelversary and oh how we do still miss him!
Alicia & Grandma Shelly took Jayden balloons, a new windmill (he & the wind pretty much beat up the old one) & a flower arrangement. Jayden & the wind immediately played with the balloons & Alicia enjoyed batting them back. :-) Monday will be his 2 month birthday & we will bring up fresh flowers then as the old ones have wilted.
The days are still hard for Alicia but she is pushing through. Her blot clotting problems are continuing to be an issue so prayers are appreciated as she and the doctors continue to try & find a level that will keep her from another dangerous blood clot. She can not even consider returning to work until the levels are under control.
For those who helped with funeral expenses the last of the thank you cards are going in the mail. I'm sorry they have been so slow going out but some days are very hard still. All additional funds that came in after expenses were paid are being saved for Jayden's headstone. Even though Alicia is going with the least expensive one ($650.00) it will still likely be mid to late summer to get funds to cover it. If she is able to get back to work it may be sooner.
We are praying for the families of Joshua C. who was barely hanging on & grew his weeks on Sunday as well as another Joshua who passed in March with Jayden & was buried this last weekend. We are also praying for 3 yr old Clodagh from Ireland who is having correction surgery & 14 day old Kinley who was doing beautifully, had her surgery & was doing very well & then contracted a potentially fatal infection, suffered damaged bowels & is now on ECMO fighting for life. Please join us in our prayers. Also don't forget to support "Save the Cherubs" at http://www.savethecherubs.org. All CDH affected deserve a chance to live & thrive.
Alicia & Grandma Shelly took Jayden balloons, a new windmill (he & the wind pretty much beat up the old one) & a flower arrangement. Jayden & the wind immediately played with the balloons & Alicia enjoyed batting them back. :-) Monday will be his 2 month birthday & we will bring up fresh flowers then as the old ones have wilted.
The days are still hard for Alicia but she is pushing through. Her blot clotting problems are continuing to be an issue so prayers are appreciated as she and the doctors continue to try & find a level that will keep her from another dangerous blood clot. She can not even consider returning to work until the levels are under control.
For those who helped with funeral expenses the last of the thank you cards are going in the mail. I'm sorry they have been so slow going out but some days are very hard still. All additional funds that came in after expenses were paid are being saved for Jayden's headstone. Even though Alicia is going with the least expensive one ($650.00) it will still likely be mid to late summer to get funds to cover it. If she is able to get back to work it may be sooner.
We are praying for the families of Joshua C. who was barely hanging on & grew his weeks on Sunday as well as another Joshua who passed in March with Jayden & was buried this last weekend. We are also praying for 3 yr old Clodagh from Ireland who is having correction surgery & 14 day old Kinley who was doing beautifully, had her surgery & was doing very well & then contracted a potentially fatal infection, suffered damaged bowels & is now on ECMO fighting for life. Please join us in our prayers. Also don't forget to support "Save the Cherubs" at http://www.savethecherubs.org. All CDH affected deserve a chance to live & thrive.
Monday, April 12, 2010
April 12, 2010 - Joshua C...
April 12, 2010
(From Grandma's Facebook Page)
Please pray for the family of Joshua C from New Mexico who lost his battle with CDH last evening.
Sunday, April 4, 2010
April 4, 2010 - Missing Jayden at Easter...
April 4, 2010 8:35 pm
(From CaringBridge Page)
(From CaringBridge Page)
Jayden
is a "You Tube" star... kind of.
The CDH awareness campaign launched
the same week of Jayden's passing and they were putting together a video
to go with the promotion. We did not expect they would have time to get
him in but they did!
He is included with over 700 other CDH survivors
& non-surviving CDH affected individuals from babies to adult. As
sad as we are at Jayden's passing if he can possible help spread the
word about CDH & increase awareness then his memory will live on and
hopefully help others.
You can see the video at:
http://www.youtube.com/watch?v=vTChMLy2EFk
http://www.youtube.com/watch?v=vTChMLy2EFk
He is at 3:10 in the video but you will have to watch close as the pictures flash quickly.
Feel
free to forward it to your family & friends, link to your My Space
& Facebook & Twitter. Help get the word out & Help Save the
Cherubs!
It
is Easter Sunday, the remembrance of the resurrection of Jesus
resurrection (for those that are Christians) & chocolate and Easter
Bunnies for others. For us it is a reminder of the promise of
everlasting life in which we hope to see him again when we come to the
time to go to the life beyond this one.
We lift up the other 3 families who lost babies to CDH in March & hope they find peace & healing and pray for those struggling to hang on.
We lift up the other 3 families who lost babies to CDH in March & hope they find peace & healing and pray for those struggling to hang on.
Monday, March 29, 2010
March 29, 2010 - Jayden is a YouTube Star!
(From Grandma's Facebook Page)
Our little Jayden is a YouTube Star!
The new CDH Awareness Song video "I'll
Never Let You Go" by The Jammies features over 700 cherubs including
Jayden at 3:10.
Please feel free to repost anywhere to raise awareness!
Song
available soon on iTunes.com with proceeds donated to CHERUBS for CDH
Awareness!
Sunday, March 28, 2010
March 28, 2010 - Visiting Jayden
March 28, 2010 7:59 pm
(From CaringBridge Page)
Another baby, A.J., has lost his fight against CDH and another baby little Joshua hangs on by a tiny thread, his parents at the same decision point Alicia was this day just 2 weeks ago.
This condition is a TERRIBLE one. Only one of the babies we know of born this month has had their surgery & are doing well, breathing on their own, learning to eat & looking forward to going home soon. We are so happy for them, yet look for answers why not Jayden? We hope that maybe his short time here will help to make others aware of CDH and how important it is to spread the word & support CHERUBS as they work towards research & awareness so that others may be saved from this sadness also.
Alicia & Grandma Shelly went up today to bring Jayden fresh flowers & add the pinwheel & balloon (it looks like the deer ate the roses Grandma Shelly brought up a week ago). Alicia is saving for a headstone but it will likely be summer before she will have enough funds to do it.
Alicia still has good days & bad. She still has several follow-up appointments with several specialists & the doctors are still trying to decide how to proceed with the blood thinners to prevent another embolism. Hopefully it will only be a couple more weeks on blood thinners.
Added a few more pictures. I am working on a video to put the pictures to music but as technical as I am on computers this is one area where I am a novice so it may be a bit before it is ready. I will post a link to it when it is ready.
Saturday, March 27, 2010
March 27, 2010 - Two Weeks...
March 27, 2010
(From Grandma's Facebook Page)
Jayden - Today is 2 weeks since you went to Heaven.
We love you & miss you!
Grandma.
Friday, March 26, 2010
March 26, 2010 - A.J...
March 26, 2010
(From Grandma's Facebook Page)
Another baby lost to CDH. Please pray for A.J.'s family.
Monday, March 22, 2010
March 22, 2010 - Help raise CDH Awareness
March 22, 2010
(From Grandma's Facebook Page)
CDH
affects a baby every 10 minutes, over 600,000 babies since 2000 -
killing 300,000 including our precious grandson Jayden this month. Help
us raise awareness & save the cherubs! http://www.savethecherubs.org/.
Help raise CDH Awareness & by reposting this status update for
Tues!
Our goal is to get over 500 CDH families & friends to post!
Saturday, March 20, 2010
March 20, 2010 - Jayden's funeral
March 20, 2010 4:44pm
(From CaringBridge Page)
Alicia is doing ok. The skills for working through grief learned at the Dougy Center years ago after her father's passing & the kindness of the nurses and doctors in letting her spend as much time with him as she wanted helped so much. The staff at Springer & Son Aloha Funeral Home also did a great job with their sensitivity & allowing her to have a private viewing.
Thank you for all those who could come (especially Aunt Kim who made the trek all the way from Seattle!) and the kindness, love & support of those who could not. Alicia & I hope that Jayden's legacy will be to remind us all to love each other every day as each day is precious & none of us are guaranteed tomorrow, as well as helping to make folks more aware of CDH.
I want to give an extra special thank you to those wanted to help with expenses, especially to the family in Arkansas. We haven't seen you in a long time but please know how much you are all still loved. We still hope to get out there in a year or two & we will give you all hugs in person. For now <<<HUGS>>>.
Friday, March 19, 2010
March 19, 2010 - Thank you for everything...
(From Grandma's Facebook Page)
Thank
you so much for all those who came to Baby Jayden's services today
& all those who couldn't but sent well wishes & love. I think he
is looking down in approval. :-}
March 19, 2010 - Thank you everybody...
March 19, 2010
(From Grandma's Facebook Page)
(From Grandma's Facebook Page)
Thank
you so much for all those who came to Baby Jayden's services today
& all those who couldn't but sent well wishes & love. I think he
is looking down in approval. :-}
Tuesday, March 16, 2010
March 16, 2010 - Update on Services
March 16, 2010
(From CaringBridge Page)
Thank you for all your wonderful support - it has been such a blessing!
Alicia is in the numb phase & Grandma Shelly cries on the drop of a hat but we are making it through. Daniel has been trying to be strong for both of us but he is sad too.
We had the meeting with the funeral home today & went out to cemetery to look at the plots still left open close to her cousin Alex and she has narrowed it down to two. We will meet with the staff tomorrow to confirm it.
Barring any unexpected changes we will be having a gravesite service at Mt. Calvary Cemetery on Friday at 3:00 pm. Daniel's cousin will be officiating. Any of the friends & family who can make it are welcome to come. The weather is supposed to be a partly cloudy 65° with only a 10% chance of rain so that is encouraging to hear.
We will not be doing a reception but hope to do a celebration of life in May after Daniel's parents return from California. If Jeremy can get off work for St. Patty's Day he & Alicia will likely make our St. Patty's Day celebration an Irish wake of sorts.
Since the local paper recently changed their policies on obituaries & now charge up the wazoo we may wait to buy a nice one until the celebration in May. For those who want to donate to charity we are requesting you donate to in Jayden's name to either:
CHERUBS (The Association of Congenital Diaphragmatic Hernia Research Awareness & Support)
3650 Rogers Rd #290
Wake Forest, NC 27587http://www.cdhdonations.org/
Your Local Red Cross Chapterhttps://american.redcross.org/site/Donation2?idb=167750579&df_id=1095&1095.donation=form1
Also if you can, babies like Jayden & adults depend on blood & blood products for life's emergencies. If you not medically restricted from donating or don't have a religious restriction feel free to donate in his name through your local home town Red Cross. HELP SAVE A LIFE!
Alicia is in the numb phase & Grandma Shelly cries on the drop of a hat but we are making it through. Daniel has been trying to be strong for both of us but he is sad too.
We had the meeting with the funeral home today & went out to cemetery to look at the plots still left open close to her cousin Alex and she has narrowed it down to two. We will meet with the staff tomorrow to confirm it.
Barring any unexpected changes we will be having a gravesite service at Mt. Calvary Cemetery on Friday at 3:00 pm. Daniel's cousin will be officiating. Any of the friends & family who can make it are welcome to come. The weather is supposed to be a partly cloudy 65° with only a 10% chance of rain so that is encouraging to hear.
We will not be doing a reception but hope to do a celebration of life in May after Daniel's parents return from California. If Jeremy can get off work for St. Patty's Day he & Alicia will likely make our St. Patty's Day celebration an Irish wake of sorts.
Since the local paper recently changed their policies on obituaries & now charge up the wazoo we may wait to buy a nice one until the celebration in May. For those who want to donate to charity we are requesting you donate to in Jayden's name to either:
CHERUBS (The Association of Congenital Diaphragmatic Hernia Research Awareness & Support)
3650 Rogers Rd #290
Wake Forest, NC 27587http://www.cdhdonations.org/
Your Local Red Cross Chapterhttps://american.redcross.org/site/Donation2?idb=167750579&df_id=1095&1095.donation=form1
Also if you can, babies like Jayden & adults depend on blood & blood products for life's emergencies. If you not medically restricted from donating or don't have a religious restriction feel free to donate in his name through your local home town Red Cross. HELP SAVE A LIFE!
Sunday, March 14, 2010
March 14, 2010 - Our Little Cherub Warrior.....
Written March 14, 2010 7:55 pm
(From CaringBridge Page)
He had the spirit of a Celtic Irish/Scottish warrior to very end.
We are home, Alicia is resting. I still have phone calls to make & things to do so I will post additional info later.
Jayden Scott Gilbert, 02/19/10 - 03/14/10, Age 23 Days
March 14, 2010 - Day 23 - Phone Call
Written March 14, 2010 10:22 am
(From CaringBridge Page)
Just got a call from Alicia, Jayden has taken a bad turn
in the last few hours. I have to get up to the hospital. Not sure when
the next posting will be.
Saturday, March 13, 2010
March 13, 2010 - 22 Days Old - Kidney Dialysis, Day 3
Written March 13, 2010 11:55 pm
(From CaringBridge Page)
This
morning Alicia slept in until late morning & awoke more restful
than she had in over a week (except for the fire drill alarm that went
off in the middle of the night).
Jayden
had a slightly damp diaper overnight but still not the soaking he
needed to have. He kept his numbers fairly stable until later morning
when they noticed his blood pressure was starting to drift down slowly.
He did have a couple more slightly damp diapers (still not the soaking
he should be doing) so it is still not promising his kidneys will
restart & by the evening we hit the end of day 3.
Here's where we are:
Good:
* Very good tolerance of Mommy holding him the night before.
* First signs of wet diapers in over 24 hours
* Potassium in normal range and BUN & Creatinine coming down (still way too high).
* No increase in swelling in some areas & even a small drop in others.
Not Good:
* Having a harder time keeping the blood pressure & sodium up.
* Red (probably blood) showing up in the dialysis drain which persisted all day.
* Red & brown showing up in the GI tube.
Bottom line:
(1)
Kidneys can take up to 5 days to turn but it is EXTREMELY RARE hence
the saying of "If they don't turn by day 3 they probably won't". Is what
we are seeing the beginning of the turn or just a last whisper? No one
can tell us for sure.
(2) Blood in the dialysis line & GI line can be signs of stomach & bowels shutting down & even possible bowel death.
(3) Blood pressure falling may be a sign the heart is almost done.
If
none of the good signs had appeared it is highly likely she would have
called it by now but she can't ignore the possibility he COULD be about
to make the corner. She decided as long as he is continuing to fight,
she will give him that chance as far as he wants to go until day 5 if
needed. If however his heart goes out in the meantime then it is
finished & it was time.
Alicia is staying the night in the parent’s room again & Grandma Shelly is home for short snooze.
Friday, March 12, 2010
March 12, 2010 - 21 Days Old - Momma Held Jayden!
Written March 12, 2010 11:34 pm
(From CaringBridge Page)
** Long Journal Entry Folks **
Today (especially tonight) has been one of the most incredible, exhilarating, scary, terrifying days of my life...
Alicia & Shelly (and a little later Daniel) were up at the hospital all day until the 7:00 pm shift exchange waiting for a sign of output that still did not yet come. On the way to the hospital we talked about the "what ifs" & how Alicia wanted to handle which cemetery, burial vs. cremation, when & how to do a service & how to pay for it as we are extremely financially limited now. We also talked about in case he did turn the corner getting him through to the next milestone of backing off to the standard ventilator to get ready for surgery and so on. We also discussed if she wanted him baptized since she is not super religious. Pretty heavy topics.
No sooner did we get up to the hospital the staff was having the discussion of did she want a DNR (do not resuscitate) order added if his heart stopped & did she want to hold him? They had brought up the subject of holding him the night before but since that meant that it was highly likely he would code in the process & he could die in her arms so she elected not to. Now with no progress made toward output it seemed more likely we were not going to see a restart of the kidney function & it might be time to let him go.
One of her biggest dreams had been to hold him but was she willing to risk loosing him in the process? All day she debated within herself the positives of maybe it would make him relax enough to kick start the kidneys & calm his heart which is not getting good blood flow to the kidneys as well as fulfilling her dream and the negatives of him crashing & dying in her arms (which could have been a positive of sorts as well as he would have been there in her love).
Daniel headed home to run errands & feed the cats while Alicia ate dinner & I moved the van to the evening exit door area & when I got back Alicia announced she was going to hold him when we got back up. I was taken aback at the sudden decision & realized we could loose him TONIGHT. As much as I support what ever decision she makes I found myself immediately struck with fear.
As we went to the unit there was a nervous quiet calm about her while I was just terrified. She told the nurse of her decision & they started immediately get things in place. She also requested to have the baby baptized before he was moved just in case he passed. The chaplain came up & did a beautiful baptism which I videotaped & they started moving stuff to get ready for the move.
As every minute ticked closer to the move my dread grew almost exponentially. I tried to get the video camera ready in a futile effort to keep myself busy & distracted then started taping as they started moving him. I swear my heart stopped. As they moved him his numbers looked fine & they laid him on Alicia's lap. I waited for the shoe to drop expecting any minute alarms to start blaring but they never did. She held him for almost 15 minutes singing & talking to him & loving on him before her arm & overall tiredness let her know it was time to go back up & then the terror started again as they moved him back. The whole time from start to finish his numbers were good & it was almost like he was saying "What's the big deal folks?" Amazing! Alicia went to stay in a parent’s room they have for her for the night & after another hour grandma went home to write this entry.
He is still with us fighting, but what will he do on Saturday...
Today (especially tonight) has been one of the most incredible, exhilarating, scary, terrifying days of my life...
Alicia & Shelly (and a little later Daniel) were up at the hospital all day until the 7:00 pm shift exchange waiting for a sign of output that still did not yet come. On the way to the hospital we talked about the "what ifs" & how Alicia wanted to handle which cemetery, burial vs. cremation, when & how to do a service & how to pay for it as we are extremely financially limited now. We also talked about in case he did turn the corner getting him through to the next milestone of backing off to the standard ventilator to get ready for surgery and so on. We also discussed if she wanted him baptized since she is not super religious. Pretty heavy topics.
No sooner did we get up to the hospital the staff was having the discussion of did she want a DNR (do not resuscitate) order added if his heart stopped & did she want to hold him? They had brought up the subject of holding him the night before but since that meant that it was highly likely he would code in the process & he could die in her arms so she elected not to. Now with no progress made toward output it seemed more likely we were not going to see a restart of the kidney function & it might be time to let him go.
One of her biggest dreams had been to hold him but was she willing to risk loosing him in the process? All day she debated within herself the positives of maybe it would make him relax enough to kick start the kidneys & calm his heart which is not getting good blood flow to the kidneys as well as fulfilling her dream and the negatives of him crashing & dying in her arms (which could have been a positive of sorts as well as he would have been there in her love).
Daniel headed home to run errands & feed the cats while Alicia ate dinner & I moved the van to the evening exit door area & when I got back Alicia announced she was going to hold him when we got back up. I was taken aback at the sudden decision & realized we could loose him TONIGHT. As much as I support what ever decision she makes I found myself immediately struck with fear.
As we went to the unit there was a nervous quiet calm about her while I was just terrified. She told the nurse of her decision & they started immediately get things in place. She also requested to have the baby baptized before he was moved just in case he passed. The chaplain came up & did a beautiful baptism which I videotaped & they started moving stuff to get ready for the move.
As every minute ticked closer to the move my dread grew almost exponentially. I tried to get the video camera ready in a futile effort to keep myself busy & distracted then started taping as they started moving him. I swear my heart stopped. As they moved him his numbers looked fine & they laid him on Alicia's lap. I waited for the shoe to drop expecting any minute alarms to start blaring but they never did. She held him for almost 15 minutes singing & talking to him & loving on him before her arm & overall tiredness let her know it was time to go back up & then the terror started again as they moved him back. The whole time from start to finish his numbers were good & it was almost like he was saying "What's the big deal folks?" Amazing! Alicia went to stay in a parent’s room they have for her for the night & after another hour grandma went home to write this entry.
He is still with us fighting, but what will he do on Saturday...
March 12, 2010 - 21 Days Old - First Update of the Day
Written March 12, 2010 10:32am
(From CaringBridge Page)
Not
much to tell. Exhaustion hit us last night & since we got no call
in the night to go back up we are getting a late start today.
No call means either no change (which in this case would not be good) or good / improving news. We will know soon enough.
No call means either no change (which in this case would not be good) or good / improving news. We will know soon enough.
March 12, 2010 - 20/21 Days Old - Late Update from Friday
Written Mar 12, 2010 12:20 am
(From CaringBridge Page)
We got back up to the hospital about 8:00 pm after
picking up one of Alicia's closest almost lifetime friend (the other
came up with her family last night) & we visited until her aunt,
cousin & a friend of theirs could come up & visit about 10:00
pm. We are very blessed to have good family & friends & love
every one dearly. Several others out of town have called several times
as well.
We had a tiny miracle as he had his first wet diaper & a little output in over 24 hours but it is not even nearly the amount he needs to start moving to be turning the corner. As much as we want to say maybe this is a sign we are very guarded & know Friday will likely tell the tale.
After dropping off our friend we are home as we are still on almost no sleep. We will be back in the morning...
We had a tiny miracle as he had his first wet diaper & a little output in over 24 hours but it is not even nearly the amount he needs to start moving to be turning the corner. As much as we want to say maybe this is a sign we are very guarded & know Friday will likely tell the tale.
After dropping off our friend we are home as we are still on almost no sleep. We will be back in the morning...
Thursday, March 11, 2010
March 11, 2010 - Smile... :-(
March 11, 2010
(From Grandma's Facebook Page)
I
am so reminded of the Charlie Chaplin song used on Muscular Dystrophy
telethons:
Smile, though your heart is aching, Smile, even though it's breaking...
Smile, though your heart is aching, Smile, even though it's breaking...
March 11, 2010 - 20 Days Old - Afternoon Update...
Written March 11, 2010 4:00 pm
(From CaringBridge Page)
Before we left for the hospital we picked out a
couple outfits, his baby books & a BEAUTIFUL baby blue blanket that
has "Little Miracle" on it with angel wings to take with us just in
case...
When we got to the hospital this morning Jayden looked a little better but his numbers are still mixed. His potassium is alot better but two of his kidney numbers (Creatinine & BUN) are still VERY bad & he still has had no output on his own. We have bought him a day or two to give the kidneys a chance to restart but the window of time he has to turn it around is quickly slipping away. An echo of the heart was inconclusive as the vibration from the breathing machine, swelling & intestines pressing on the heart are making it hard to see if the heart is getting good fluid levels in & out. Basically we still don't know.
Jayden's Uncle Jeremy was up for about 3 hours & his odd sense of humor did a great job of getting Alicia & I to laugh and smile some! We are still trying to get family & friends up tonight to visit but we had to come home for a bit as Alicia did not sleep at all last night & after being up over 24 hours straight she is falling asleep sitting up. We will be back up at the end of shift exchange about 8:00 pm if we don't get any calls between now & then.
When we got to the hospital this morning Jayden looked a little better but his numbers are still mixed. His potassium is alot better but two of his kidney numbers (Creatinine & BUN) are still VERY bad & he still has had no output on his own. We have bought him a day or two to give the kidneys a chance to restart but the window of time he has to turn it around is quickly slipping away. An echo of the heart was inconclusive as the vibration from the breathing machine, swelling & intestines pressing on the heart are making it hard to see if the heart is getting good fluid levels in & out. Basically we still don't know.
Jayden's Uncle Jeremy was up for about 3 hours & his odd sense of humor did a great job of getting Alicia & I to laugh and smile some! We are still trying to get family & friends up tonight to visit but we had to come home for a bit as Alicia did not sleep at all last night & after being up over 24 hours straight she is falling asleep sitting up. We will be back up at the end of shift exchange about 8:00 pm if we don't get any calls between now & then.
March 11, 2010 - 20 Days Old - Calling family & friends...
Written March 11, 2010 6:54am
(From CaringBridge Page)
We got an update from the hospital a bit ago. There is
not any real improvement & he is requiring more medication for his
blood pressure & agitation.
We are calling family & friends...
We are calling family & friends...
Wednesday, March 10, 2010
March 10, 2010 - 19 Days Old - A Tough Day...
Written March 10, 2010 - 10:33pm
(From CaringBridge Page)
It has been one of the toughest days. Jayden's kidneys continued the downward slide and by mid-afternoon his labs were looking very bad with no output for 24 hours so Alicia was faced with a very difficult choice to let Jayden grow his wings or try to do kidney dialysis in hopes of relieving the pressure & giving the kidneys a chance to restart.
We had a quick bedside consult with Dr. Bliss, the surgeon who is expected to do the CDH correction surgery & the neonatal kidney specialist (I can't remember his name) for about 20 minutes. We were weighing the encouraging signs such as a good kidney ultrasound that suggest they may be able to restart given the right treatment & continued reasonable oxygen & CO2 levels (considering the assault the kidney failure is putting on all his systems) & the negatives of the procedure & the sky high panels almost but not quite to the point of no return. The doctors are not sure why he has taken this turn as there appears to be no obvious cause but are suspecting an infection not evident on the blood workups. They are running 3 different antibiotics in attempt to knock it down in this is the cause.
We also looked at the logistics of getting a good access location as the neck is not available since it was used for the ECMO before & can't be used again, going for the groin which is horribly swollen & may not be big enough or a doing a peritoneal dialysis which goes through a membrane in the abdomen that works well for non-CDH babies but they had not tried in a CDH one here before & might pose some big risks because of the lack a complete diaphragm. After weighing the options we were willing to let them try the peritoneal access with the understanding that if they couldn't gain access there or saw signs of distress they would go for the groin. It was also made abundantly clear that no matter which route we go if he does not improve pretty quickly we will be out of options.
Luckily they got good access right away & took a lot of fluid off him but his pulse is still very high & his blood pressure is still VERY low so it is minute by minute again. Alicia has been so brave through this & is fighting for him but also looking for signs from him if it time to let him go. As much as we still pray for a wondrous miracle she knows that point may come much too soon. After a long exhausting evening we are home to try and get some rest & pray the phone doesn't ring in the middle of the night...
We got a few family friends through tonight to visit & going to try and get the remaining through tomorrow just in case.
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