We are slowly getting these entries added in.
Please be patient & check back often for updates!
Thanks!
Alicia & Shelly
Wednesday, August 17, 2011
Thursday, August 11, 2011
August 11, 2011 - From a CDH family friend
Tagged to Grandma's Facebook page
This has been such a terrible month for CHERUBS. Babies Parker, Conley, Grace, Madelyn, Jeremy, Mattiaus, Adriel, Miles and now Hector, may you rest in peace with all the breaths you need and the wings to fly as fast as you want. Please vote...we only have a short time left and desperately need the support of our family and friends. :'(
This has been such a terrible month for CHERUBS. Babies Parker, Conley, Grace, Madelyn, Jeremy, Mattiaus, Adriel, Miles and now Hector, may you rest in peace with all the breaths you need and the wings to fly as fast as you want. Please vote...we only have a short time left and desperately need the support of our family and friends. :'(
Tuesday, August 9, 2011
Sunday, July 31, 2011
July 31, 2011 - Decking Out My Car in Memory Jayden
From Mommy's Facebook Page
It's my little family on my new car.
I still want more CDH stuff on my car LOL.
It's my little family on my new car.
I still want more CDH stuff on my car LOL.
Saturday, July 30, 2011
Tuesday, July 19, 2011
July 19, 2011 - 17 Months Old...
From Mommy's Facebook Page
Going to see my Jayden now. Today is his 17 month birthday.
I can't believe it's been 17 months since we welcomed my perfect baby into this world. I don't know how I will handle next month as then he will be a year and a half old.
OH MY JAYDEN, HOW I MISS YOU SO!
HAPPY 17 Month BIRTHDAY my Lil' Man!
Going to see my Jayden now. Today is his 17 month birthday.
I can't believe it's been 17 months since we welcomed my perfect baby into this world. I don't know how I will handle next month as then he will be a year and a half old.
OH MY JAYDEN, HOW I MISS YOU SO!
~~~~~~~~~~~~~~~~~~~~~
HAPPY 17 Month BIRTHDAY my Lil' Man!
MOMMY MISSES YOU SO MUCH!
Thursday, July 14, 2011
July 14, 2011 - 16 months Since Jayden Grew His Wings...
From Mommy's Facebook Page
Well he is a boy.
You know what they say about boys and cars. Lol.
Well he is a boy.
You know what they say about boys and cars. Lol.
Monday, July 4, 2011
July 4, 2011 - Second 4th of July for Jayden in Heaven...
From Mommy's Facebook Page
This may be my 2nd 4th without my son Jayden, but to me it is still as painful as the 1st!
CDH took my SON & ANY chance at a 1st, let alone ANY 4th of July with HIM & ME!! I WILL NEVER FORGIVE GOD FOR TAKING THAT AND HIM AWAY FROM ME!!!!
This may be my 2nd 4th without my son Jayden, but to me it is still as painful as the 1st!
CDH took my SON & ANY chance at a 1st, let alone ANY 4th of July with HIM & ME!! I WILL NEVER FORGIVE GOD FOR TAKING THAT AND HIM AWAY FROM ME!!!!
Thursday, June 30, 2011
Sunday, June 19, 2011
June 19, 2011 - Please VOTE!
From Mommy's Facebook Page
June 19, 2011
There are moments in life when you wish you could bring someone down from heaven... and spend the day with them just one more time, kiss them goodbye or hear their voice again.
~~~~~~~~~~~~~~~~~~~~~~
16 Months ago today I gave birth to the most BEAUTIFUL baby boy ever! And just 23 DAYS later I had to say goodbye with him in my arms!
NO mom OR dad should have to say goodbye to their baby.
PLEASE go VOTE and help me save other moms and dads from having to say goodbye like I had to do. (Remember this could be YOUR baby too!!!!!!!)
Please help me give my son LOTS of votes in his name and help me show him he will never be forgotten or left behind! Lets help ROCK the votes and get the grand prize so we can do the research and TRULY help these babes!
June 19, 2011
There are moments in life when you wish you could bring someone down from heaven... and spend the day with them just one more time, kiss them goodbye or hear their voice again.
~~~~~~~~~~~~~~~~~~~~~~
16 Months ago today I gave birth to the most BEAUTIFUL baby boy ever! And just 23 DAYS later I had to say goodbye with him in my arms!
NO mom OR dad should have to say goodbye to their baby.
PLEASE go VOTE and help me save other moms and dads from having to say goodbye like I had to do. (Remember this could be YOUR baby too!!!!!!!)
Please help me give my son LOTS of votes in his name and help me show him he will never be forgotten or left behind! Lets help ROCK the votes and get the grand prize so we can do the research and TRULY help these babes!
Thursday, June 16, 2011
Wednesday, June 15, 2011
Monday, June 6, 2011
June 6, 2011 - AMAZING women!!
From Grandma's Facebook Page
AMAZING women...
One has been in labor for 25 hours and will be having a c-section to deliver her baby who will be born with CDH.
The other just lost her daughter to CDH 1 month after she was born.
The amazing part to this is that through being in labor and grieving, they are pushing hard for votes for CHERUBS!
It's people with that kind of dedication that can help win funds for CDH research!
AMAZING women...
One has been in labor for 25 hours and will be having a c-section to deliver her baby who will be born with CDH.
The other just lost her daughter to CDH 1 month after she was born.
The amazing part to this is that through being in labor and grieving, they are pushing hard for votes for CHERUBS!
It's people with that kind of dedication that can help win funds for CDH research!
Thursday, June 2, 2011
June 2, 2011 - Another Cherub Lost
From Grandma's Facebook Page
Changing my profile picture in memory of baby Penelope who lost her battle against CDH today. Fly high little angel! :'(
Changing my profile picture in memory of baby Penelope who lost her battle against CDH today. Fly high little angel! :'(
Tuesday, May 31, 2011
May 31, 2011 - Cherubs Lost in May 2011
Please pray for the families of all these Cherubs lost in May... :'(
♥ Bryson ♥ Phoenix ♥ Kellan ♥
♥ Bryson ♥ Phoenix ♥ Kellan ♥
Sunday, May 29, 2011
May 29, 2011 - CDH is "Hinted" at in Local Hospital's Video!
(From Mommy's Facebook Page)
Even just the few seconds they said it and the fact they only said Congenital Diaphragmatic and didn't say Hernia we know they ARE talking about CDH and now with just this SMALL bit of spreading the word I see it as the 1st step to FINALLY get the word out and 1 step closer to ENDING CDH for GOOD!
Even just the few seconds they said it and the fact they only said Congenital Diaphragmatic and didn't say Hernia we know they ARE talking about CDH and now with just this SMALL bit of spreading the word I see it as the 1st step to FINALLY get the word out and 1 step closer to ENDING CDH for GOOD!
Friday, May 27, 2011
May 27, 2011 - Jayden has a New Playmate...
(From Grandma's Facebook Page)
Changing my profile photo in memory of Kellan, a 4 yr old CDH Cherub lost this week in a pool accident. Please keep his family in your prayers.
~~~~~~~~~~~~~~
It just makes no sense! This little guy fought so HARD & beat the odds against the CDH monster, only to lose his life to an accident???
~~~~~~~~~~~~~~
Changing my profile photo in memory of Kellan, a 4 yr old CDH Cherub lost this week in a pool accident. Please keep his family in your prayers.
~~~~~~~~~~~~~~
It just makes no sense! This little guy fought so HARD & beat the odds against the CDH monster, only to lose his life to an accident???
~~~~~~~~~~~~~~
Tuesday, May 24, 2011
May 24, 2011 - Keep CDH Awareness Trucking in Memory of Jayden!
(From Grandma's Facebook Page)
^^^^^^^^^^^^^^l |^^^^^^^^^^| l
| ♥ INCREASE CDH AWARENESS ♥ .....||”"”;..,___.
|……_______=====_| l______________l _||__|…, ] | |
“(@)’(@)”""""""*l'(@)l'(@)l """"""""""""""(@)'(@)""""'(@)
Put this on your status & keep this convoy going.
^^^^^^^^^^^^^^l |^^^^^^^^^^| l
| ♥ INCREASE CDH AWARENESS ♥ .....||”"”;..,___.
|……_______=====_| l______________l _||__|…, ] | |
“(@)’(@)”""""""*l'(@)l'(@)l """"""""""""""(@)'(@)""""'(@)
Put this on your status & keep this convoy going.
Monday, May 23, 2011
May 23, 2011 - Voting for Vivint in Honor of Clara & Samuel
(From Grandma's Facebook Page)
Today we vote in honor of CHD baby Clara who is almost 2 months old & just stepped down to the Intermediate Nursery from the NICU on Thurs, and in memory of CDH baby Samuel whose parents had to say goodbye on Christmas Eve after such a courageous fight!
Please join us in voting for CHERUBS so they can help of these most precious children & the families!
Today we vote in honor of CHD baby Clara who is almost 2 months old & just stepped down to the Intermediate Nursery from the NICU on Thurs, and in memory of CDH baby Samuel whose parents had to say goodbye on Christmas Eve after such a courageous fight!
Please join us in voting for CHERUBS so they can help of these most precious children & the families!
Saturday, May 21, 2011
May 21, 2011 - Today we vote in honor of Benjamin & Ava
(From Grandma's Facebook Page)
Today we vote in honor of Cherub baby Benjamin who had corrective surgery 2 days ago & in memory of Cherub Ava whose 47 days on ECMO was an incredible testimony to these babies will to fight & doctor's willingness to give her a chance. May her pink boxing gloves glow with gold in Heaven!
PLEASE VOTE!
Today we vote in honor of Cherub baby Benjamin who had corrective surgery 2 days ago & in memory of Cherub Ava whose 47 days on ECMO was an incredible testimony to these babies will to fight & doctor's willingness to give her a chance. May her pink boxing gloves glow with gold in Heaven!
PLEASE VOTE!
Friday, May 20, 2011
May 19/20, 2011 - 14 Months Since Jayden was Born...
(From Grandma's Facebook Page)
May 19, 2011
Today's votes are in honor of baby Matthew whose parents drove ALL THE WAY ACROSS THE COUNTRY to get him from California to Shands in Florida. He is now he working on feeding so he can go home, and memory of Shane Torrence. We wish he were here with us but I bet he is SO proud of what his mom Dawn has done to make CHERUBS what it is today!
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May 20, 2011
Today we are voting in honor of Tracy, a 42 yr old Cherub that only found out she had CDH at 39 & is still waiting for surgery (long story).
Yes, this in NOT the 1st adult undiagnosed How many more are there?
Also I am voting in memory of Cherub Brielle. Her family is honoring her memory by hosting Breath's For Brielle "Bubble Walk for CHERUBS". CDH may have taken her but her spirit lives on!
May 19, 2011
Today's votes are in honor of baby Matthew whose parents drove ALL THE WAY ACROSS THE COUNTRY to get him from California to Shands in Florida. He is now he working on feeding so he can go home, and memory of Shane Torrence. We wish he were here with us but I bet he is SO proud of what his mom Dawn has done to make CHERUBS what it is today!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
May 20, 2011
Today we are voting in honor of Tracy, a 42 yr old Cherub that only found out she had CDH at 39 & is still waiting for surgery (long story).
Yes, this in NOT the 1st adult undiagnosed How many more are there?
Also I am voting in memory of Cherub Brielle. Her family is honoring her memory by hosting Breath's For Brielle "Bubble Walk for CHERUBS". CDH may have taken her but her spirit lives on!
Thursday, May 19, 2011
May 19, 2011 - Many THANKS to our CDH friends!
(From Grandma's Facebook Page)
I am absolutely AMAZED at the number of CDH friends who helped the NMF win $25K in round 1 in the Chase Community Giving contest. <tear!>
Round 2 starts today & runs until May 25th for the possibility of winning an even bigger amount.
I am asking ALL my family & friends to join us in helping to "Have-a-Heart for Marfan". If not for all the hard work & research the NMF does my Marfan husband might not be with us!
(At the time this was posted, Mommy & Grandma had not yet been diagnosed with Marfan syndrome yet)
I am absolutely AMAZED at the number of CDH friends who helped the NMF win $25K in round 1 in the Chase Community Giving contest. <tear!>
Round 2 starts today & runs until May 25th for the possibility of winning an even bigger amount.
I am asking ALL my family & friends to join us in helping to "Have-a-Heart for Marfan". If not for all the hard work & research the NMF does my Marfan husband might not be with us!
(At the time this was posted, Mommy & Grandma had not yet been diagnosed with Marfan syndrome yet)
Wednesday, May 18, 2011
May 18, 2011 - Voting in Vivint in honor of Ciaran & Bryson
(From Grandma's Facebook Page)
Today I am voting in honor of baby Ciaran who was born May 5th, had surgery May 15th and is working on getting stronger, and in memory of baby Bryson who grew his wings on May 5th.
Please join me in voting to support ALL these precious ones & their families!
Today I am voting in honor of baby Ciaran who was born May 5th, had surgery May 15th and is working on getting stronger, and in memory of baby Bryson who grew his wings on May 5th.
Please join me in voting to support ALL these precious ones & their families!
Tuesday, May 17, 2011
May 17, 2011 - CHERUBS is competing in the Vivint Contest
(From Grandma's Facebook Page)
Everyday this week I am picking a name of a Cherub who is fighting for life to vote in honor of & a Cherub angel to vote in memory of.
For today I am voting in honor of 7 month baby Sofia who was doing well & stopped breathing unexpectedly & is fighting hard, & of course in memory of our beloved Jayden who would have been 15 months old on Thurs...
Everyday this week I am picking a name of a Cherub who is fighting for life to vote in honor of & a Cherub angel to vote in memory of.
For today I am voting in honor of 7 month baby Sofia who was doing well & stopped breathing unexpectedly & is fighting hard, & of course in memory of our beloved Jayden who would have been 15 months old on Thurs...
Thursday, May 12, 2011
May 12, 2011 - 2 More Cherubs Lost... :'(
(From Grandma's Facebook Page)
Grandma Posted:
Changing my profile in memory of 2 CDH Cherubs lost so far this week. Baby Bryson was born preemie & grew his wings on Sunday & baby Phoenix was lost on Monday after a hard fight against CDH.
Please keep both their families in your prayers. Fly High Little Ones!!!
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Grandma Posted:
Changing my profile in memory of 2 CDH Cherubs lost so far this week. Baby Bryson was born preemie & grew his wings on Sunday & baby Phoenix was lost on Monday after a hard fight against CDH.
Please keep both their families in your prayers. Fly High Little Ones!!!
Sunday, May 8, 2011
May 8, 2011 - Happy Mother's Day!
(From Grandma's Facebook Page)
May 8, 2011
Happy Mother's Day to my Mom (who put up with me all these years!) and my daughters L. & Alicia.
Thank you Mom for all you did, I could only hope to be a good 2nd to you.
L., you and I may have our issues, but I am still VERY proud of the mom that you are to B. & K.
Alicia, I am SO proud of the mommy you've been to Jayden. I know he is looking down on you proudly!
I Love You All!!! ♥♥♥
May 8, 2011
Happy Mother's Day to my Mom (who put up with me all these years!) and my daughters L. & Alicia.
Thank you Mom for all you did, I could only hope to be a good 2nd to you.
L., you and I may have our issues, but I am still VERY proud of the mom that you are to B. & K.
Alicia, I am SO proud of the mommy you've been to Jayden. I know he is looking down on you proudly!
I Love You All!!! ♥♥♥
Thursday, May 5, 2011
Saturday, April 30, 2011
April 30, 2011 - Cherubs Lost in April 2011
Please pray for the families of all these Cherubs lost in April... :'(
♥ Maddox ♥ Straton ♥ Lucy ♥ Sofia ♥
♥ Maddox ♥ Straton ♥ Lucy ♥ Sofia ♥
Friday, April 29, 2011
April 29, 2011 - We need to win this and HELP our babes...
(From Mommy's Facebook Page)
We need to win this and HELP our babes and finally tell the world we will NOT lose 1 more baby to this EVIL!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
CHERUBS with the Vivint Gives Back Project | Vivint
www.voteforcdh.org
Wednesday, April 27, 2011
April 27, 2011 - A Friend Posted this for Mommy & Grandma...
Little Angels
When God calls little children
to dwell with Him above.
We mortals sometimes question
the wisdom of His love.
For no heartache compares with
the death of one small child,
who does so much to make our world
seem wonderful and mild.
Perhaps God tires of calling
the aged to His fold.
So He picks a rosebud
before it can grow old.
God knows how much we need them
and so He takes but few,
to make the land of Heaven
more beautiful to view.
Believing this is difficult
still somehow me must try.
The saddest word mankind know
will always be "Goodbye".
So when a child departs
we who are left behind,
must realize God loves children,
Angels are hard to find.
~Author Unknown
When God calls little children
to dwell with Him above.
We mortals sometimes question
the wisdom of His love.
For no heartache compares with
the death of one small child,
who does so much to make our world
seem wonderful and mild.
Perhaps God tires of calling
the aged to His fold.
So He picks a rosebud
before it can grow old.
God knows how much we need them
and so He takes but few,
to make the land of Heaven
more beautiful to view.
Believing this is difficult
still somehow me must try.
The saddest word mankind know
will always be "Goodbye".
So when a child departs
we who are left behind,
must realize God loves children,
Angels are hard to find.
~Author Unknown
Monday, April 25, 2011
April 25, 2011 - This is why research is needed!!
(From Grandma's Facebook Page)
This is why research is needed!!
If we can PREVENT CDH or help expand prenatal treatments like gel tracheal occlusion or other treatments we haven't even thought of yet we can save so many more babies & save families, insurance companies & taxpayers money!
Saving lives & money? Now that would be a Win-Win!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
This is why research is needed!!
If we can PREVENT CDH or help expand prenatal treatments like gel tracheal occlusion or other treatments we haven't even thought of yet we can save so many more babies & save families, insurance companies & taxpayers money!
Saving lives & money? Now that would be a Win-Win!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Costs of congenital diaphragmatic hernia repair in the United States-extracorporeal membrane oxygenation foots the bill.
Raval MV, Wang X, Reynolds M, Fischer AC.
Source
Division of Research and Optimal Patient Care,
American College of Surgeons,
Chicago, IL 60611, USA.
m-raval@md.northwestern.edu
J Pediatr Surg. 2011 Apr;46(4):617-24.
doi: 10.1016/j.jpedsurg.2010.09.047.
Abstract
BACKGROUND:
Congenital diaphragmatic hernia (CDH) is the costliest noncardiac congenital defect.
Extracorporeal membrane oxygenation (ECMO) is a treatment strategy offered to those babies with CDH who would not otherwise survive on conventional therapy.
The primary objective of our study was to identify the leading source of expenditures in CDH care.
METHODS:
All patients surviving CDH repair were identified in the Kids' Inpatient Database (KID) from 1997 to 2006, with costs converted to 2006 US dollars.
Patients were categorized into groups based on severity of disease for comparison including CDH repair only, prolonged ventilator dependence, and ECMO use.
Factors associated with greater expenditures in CDH management were analyzed using a regression model.
RESULTS:
Eight hundred thirty-nine patients from 213 hospitals were studied.
Extracorporeal membrane oxygenation use decreased from 18.2% in 1997 to 11.4% in 2006 (P = .002).
Congenital diaphragmatic hernia survivors managed with ECMO cost more than 2.4 times as much as CDH survivors requiring only prolonged ventilation post-repair and 3.5 times as much as those with CDH repair only (both P < .001).
Age, multiplicity of diagnoses, patient transfer, inhaled nitric oxide use, prolonged ventilation, and ECMO use were all associated with higher costs.
Extracorporeal membrane oxygenation use was the single most important factor associated with higher costs, increasing expenditures 2.4-fold (95% confidence interval, 2.1-2.8).
Though the CDH repair with ECMO group constituted 12.2% of patients, this group has the highest median costs ($156,499.90 / patient) and constitutes 28.5% of national costs based on CDH survivors in the KID.
Annual national cost for CDH survivors is $158 million based on the KID, and projected burden for all CDH patients exceeds $250 million/year.
CONCLUSIONS:
Extracorporeal membrane oxygenation use is the largest contributing factor to the economic burden in CDH.
With limited health care resources, judicious resource utilization in CDH care merits further study.
Copyright © 2011 Elsevier Inc. All rights reserved.
PMID: 21496527 [PubMed - indexed for MEDLINE]
Wednesday, April 20, 2011
April 20, 2011 - Exciting news for raising CDH awareness week!!!
(From Grandma's Facebook Page)
Exciting news for raising CDH awareness week!!!!
A Cherub survivor (who also has a Cherub angel brother in Heaven with our Jayden) WON in a Ralph Lauren model contest!!!! GREAT JOB Celie!!!!
--- Announcing the RL Gang Grand Prize Winner! Congratulations to Celie, the newest member of the RL Gang. Thank you to everyone who entered and voted and a special thank you to the amazing finalists. ---
Exciting news for raising CDH awareness week!!!!
A Cherub survivor (who also has a Cherub angel brother in Heaven with our Jayden) WON in a Ralph Lauren model contest!!!! GREAT JOB Celie!!!!
--- Announcing the RL Gang Grand Prize Winner! Congratulations to Celie, the newest member of the RL Gang. Thank you to everyone who entered and voted and a special thank you to the amazing finalists. ---
Tuesday, April 19, 2011
April 18th & 19th, 2011 - Going to Visit Jayden...
(From Grandma's Facebook Page)
Alicia & I will be going up to visit Jayden & if the weather is good will do a balloon release for him & all our Cherubs. It will also be his 14 month birthday. Holding him & all the Cherubs close in our hearts as we hope to get the word out. I will try to get video to post.
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Was able to do the balloon release but I had to go to work before I could up load the pictures. Will work on it tonight!
April 19, 2011 at 6:10pm
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Alicia & I will be going up to visit Jayden & if the weather is good will do a balloon release for him & all our Cherubs. It will also be his 14 month birthday. Holding him & all the Cherubs close in our hearts as we hope to get the word out. I will try to get video to post.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Was able to do the balloon release but I had to go to work before I could up load the pictures. Will work on it tonight!
April 19, 2011 at 6:10pm
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For family & friends who didn't see it before, THIS is why we are so passionate about CDH!!!
If you are touched by his story, feel free to share!
http://www.youtube.com/watch?v=JWwo9a7xeyw
http://www.youtube.com/watch?v=JWwo9a7xeyw
Sunday, April 17, 2011
April 17, 2011 - Please sign the petition!
(From Grandma's Facebook Page)
Shelly shared a link.
CDH took the life of my precious grandson Jayden. No one knows what causes it meaning we don't know how to prevent it. Research is the key but it costs money. Every 10 minutes a baby is born with CDH & 50% them will die. It takes less than 2 minutes to sign this petition. Can you spare 2 minutes to help?
Shelly shared a link.
CDH took the life of my precious grandson Jayden. No one knows what causes it meaning we don't know how to prevent it. Research is the key but it costs money. Every 10 minutes a baby is born with CDH & 50% them will die. It takes less than 2 minutes to sign this petition. Can you spare 2 minutes to help?
Tuesday, April 5, 2011
April 5 & 6, 2011 - Jayden's Now Has Personalized CDH Awareness Items!
Jayden has his CDH Awareness items we can get from CHERUBS!
Personalized Congenital Diaphragmatic Hernia Awareness Ribbons with photo and name of a real life cherub made for family & friends to promote finding the cause, prevention and best treatment for CDH.
http://www.cafepress.com/cherubs/7768246
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Keep Jayden's memory alive on his 14 month birthday and support CHERUBS in any way you can. For our family & friends I can send you a copy of Jayden's personalized awareness ribbon to post on you profile picture for April 14th in support if you life. Our special little boy touched so many... help him & CHERUBS reach out to many more!
Personalized Congenital Diaphragmatic Hernia Awareness Ribbons with photo and name of a real life cherub made for family & friends to promote finding the cause, prevention and best treatment for CDH.
http://www.cafepress.com/cherubs/7768246
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Keep Jayden's memory alive on his 14 month birthday and support CHERUBS in any way you can. For our family & friends I can send you a copy of Jayden's personalized awareness ribbon to post on you profile picture for April 14th in support if you life. Our special little boy touched so many... help him & CHERUBS reach out to many more!
Thursday, March 31, 2011
March 31, 2011 - Cherubs Lost in March 2011... :-(
Please Pray for the families of all these Cherubs lost in March...
♥ Dougie ♥ Andrew ♥ Aurora ♥ Zoe S. ♥ Logan ♥ Maggie ♥
♥ Dougie ♥ Andrew ♥ Aurora ♥ Zoe S. ♥ Logan ♥ Maggie ♥
Monday, March 14, 2011
March 14, 2011 - Additional Entries from Mommy
(From Mommy's Facebook Page)
Saw Jay. I was fine until mom left. Then the crying came out in a bomb. I started telling him about this day & the more I said the bigger the tears. When we were there my mom told me Zoe was not doing well off ECMO I told Jay to be with her & help her be OK. PLEASE pray for her & her family! I LOVE HIM SO MUCH to think about today & all it means it's just TOO MUCH!
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I just don't think I can handle day. Every little thing is making me BURST out in tears and I just can't stop crying and thinking about my Jayden at all. I truly feel I am going to crack and fall more than ever before. I just don't think I can handle SO MUCH pain!!! WHY HIM?? WHY HIM?? OH DEAR GOD WHY NOT ME!!!!!!!
Saw Jay. I was fine until mom left. Then the crying came out in a bomb. I started telling him about this day & the more I said the bigger the tears. When we were there my mom told me Zoe was not doing well off ECMO I told Jay to be with her & help her be OK. PLEASE pray for her & her family! I LOVE HIM SO MUCH to think about today & all it means it's just TOO MUCH!
----------------------------------------
I just don't think I can handle day. Every little thing is making me BURST out in tears and I just can't stop crying and thinking about my Jayden at all. I truly feel I am going to crack and fall more than ever before. I just don't think I can handle SO MUCH pain!!! WHY HIM?? WHY HIM?? OH DEAR GOD WHY NOT ME!!!!!!!
March 14, 2011 - Mommy's Message to Jayden...
(From Mommy's Facebook Page)
1 year ago today my Jayden returned to Heaven after fighting for life for 23 days. He truly was a brave strong baby and will always have my heart. I love and miss him MORE THEN LIFE ITSELF.
Fly high my precious Jayden mommy loves you ALWAYS!
1 year ago today my Jayden returned to Heaven after fighting for life for 23 days. He truly was a brave strong baby and will always have my heart. I love and miss him MORE THEN LIFE ITSELF.
Fly high my precious Jayden mommy loves you ALWAYS!
Sunday, March 13, 2011
March 13, 2011 - Jayden's New Video - Finally!!!
(From Grandma's Facebook Page)
After a false start out of the gates yesterday I think (crossing fingers) that we are good to go with Jayden's Reflection video. I still see so many slides that could be SO much better but that is probably the perfectionist in me. I fixed all the major errors that were found and got the missing slide back in. Please be merciful.
Tomorrow is Jayden's 1 yr angelversary. Perhaps it is fitting that I did not make the earlier deadlines. I hope he is proud. I know we are SO very proud of him!
Here is the summary for those who may be watching on their phones & can't view it.
------------------------------------------------
Jayden's Reflection Video - Happy 1st Birthday Jayden!
It has been a year since our Cherub angel Jayden was born and grew his wings. Although he is no longer with us, he is forever in our hearts and is still reaching out to touch others and help other families with CDH.
Please join us as we look back on his time. If you are touched by his and all the angel stories please go to http://www.cdhsupport.org/ -or- http://www.savethecherubs.org/ to learn more about Congenital Diaphragmatic Hernia and find out how you can support this most worthy cause. "Help Save The Cherubs!"
NOTE: Since this video was created we have lost 2 more Cherubs....
Fly high little Andrew M. & Aurora!
*** Friends in Germany - Sorry that YouTube blocked it.***
For more from Vanessa Cruz, visit her channel at TheVanessaCruz, http://www.youtube.com/user/TheVanessaCruz
For more from Jumoke Hill, visit his channel at JumokeTV, http://www.youtube.com/user/JumokeTV
--------------------------------------------------------
Thanks for all your love & support!!!
Alicia, Jayden & Shelly
If I missed any one it was not intentional, please know you are all remembered too!!
After a false start out of the gates yesterday I think (crossing fingers) that we are good to go with Jayden's Reflection video. I still see so many slides that could be SO much better but that is probably the perfectionist in me. I fixed all the major errors that were found and got the missing slide back in. Please be merciful.
Tomorrow is Jayden's 1 yr angelversary. Perhaps it is fitting that I did not make the earlier deadlines. I hope he is proud. I know we are SO very proud of him!
Here is the summary for those who may be watching on their phones & can't view it.
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Jayden's Reflection Video - Happy 1st Birthday Jayden!
It has been a year since our Cherub angel Jayden was born and grew his wings. Although he is no longer with us, he is forever in our hearts and is still reaching out to touch others and help other families with CDH.
Please join us as we look back on his time. If you are touched by his and all the angel stories please go to http://www.cdhsupport.org/ -or- http://www.savethecherubs.org/ to learn more about Congenital Diaphragmatic Hernia and find out how you can support this most worthy cause. "Help Save The Cherubs!"
NOTE: Since this video was created we have lost 2 more Cherubs....
Fly high little Andrew M. & Aurora!
*** Friends in Germany - Sorry that YouTube blocked it.***
If you would like to see Jayden's memorial video from 2010 you can view it at
For more from Vanessa Cruz, visit her channel at TheVanessaCruz, http://www.youtube.com/user/TheVanessaCruz
For more from Jumoke Hill, visit his channel at JumokeTV, http://www.youtube.com/user/JumokeTV
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Thanks for all your love & support!!!
Alicia, Jayden & Shelly
If I missed any one it was not intentional, please know you are all remembered too!!
Saturday, March 12, 2011
March 12, 2011 - A Letter to my Son for his 7 Month Birthday (Aug 19, 2010)
(From Mommy's Facebook Page)
To my son Jayden how I miss you so, everyday I cry inside because you're not here.
I miss your hand around my finger and looking into your eyes. I remember the first time I changed your diaper and took your temperature, the doctor said you calmed down when I did all those things. I think it's because you knew it was me.
Oh my sweet baby Jayden 23 days on this earth was just not enough and for that my "Lil' Man" I will always have the hurt of losing you just way too soon.
I WILL ALWAYS LOVE YOU!!!!
FOREVER YOUR MOMMY.
I miss your hand around my finger and looking into your eyes. I remember the first time I changed your diaper and took your temperature, the doctor said you calmed down when I did all those things. I think it's because you knew it was me.
Oh my sweet baby Jayden 23 days on this earth was just not enough and for that my "Lil' Man" I will always have the hurt of losing you just way too soon.
I WILL ALWAYS LOVE YOU!!!!
FOREVER YOUR MOMMY.
Thursday, March 10, 2011
March 10, 2011 - Jayden's Video & Reminders About Life...
Jayden's Video & Reminders About Life...
by Grandma on her Facebook Notes on Thursday, March 10, 2011 at 2:06 am
The reflection video is all but done. It needs a couple of minor adjustments & final proofing but those will go quickly. I had to make a major change in the music setup but I think it will work better overall & it helps me not to have certain clips rushed I felt were important not be rushed. I also found a way to add in a neat new feature I had not done in prior videos.
All week my mind kept going back to how precious life is & how important it is to treasure every moment we have as we DON'T know when it will be our last. I am still saddened that an important family member & their family has been shaken so deeply by the sudden loss of a close friend who seemed to have their whole life ahead of them & was cut down tragically last weekend by an undetected medical condition.
I also got an email this week from another family member that a relative who has been in a long battle with cancer had a new growth WHILE undergoing chemo. I worry another part of the family who we have lost contact with may be having medical issues (trust me, I am trying to reconnect!). And of course there is always the constant question of is today the day Marfan's takes my husband?
I try to stay positive and usually can, but this week, coming up on Jayden's Angelversary on Monday is just a little harder than usual. It is a reminder... Hug the important people in your life while you still can, treasure them & love them.
Don't forget & then have to say "Sorry, I never told you, all I wanted to say."
Love to all of you...
Shelly
by Grandma on her Facebook Notes on Thursday, March 10, 2011 at 2:06 am
The reflection video is all but done. It needs a couple of minor adjustments & final proofing but those will go quickly. I had to make a major change in the music setup but I think it will work better overall & it helps me not to have certain clips rushed I felt were important not be rushed. I also found a way to add in a neat new feature I had not done in prior videos.
All week my mind kept going back to how precious life is & how important it is to treasure every moment we have as we DON'T know when it will be our last. I am still saddened that an important family member & their family has been shaken so deeply by the sudden loss of a close friend who seemed to have their whole life ahead of them & was cut down tragically last weekend by an undetected medical condition.
I also got an email this week from another family member that a relative who has been in a long battle with cancer had a new growth WHILE undergoing chemo. I worry another part of the family who we have lost contact with may be having medical issues (trust me, I am trying to reconnect!). And of course there is always the constant question of is today the day Marfan's takes my husband?
I try to stay positive and usually can, but this week, coming up on Jayden's Angelversary on Monday is just a little harder than usual. It is a reminder... Hug the important people in your life while you still can, treasure them & love them.
Don't forget & then have to say "Sorry, I never told you, all I wanted to say."
One Sweet Day
Love to all of you...
Shelly
Monday, March 7, 2011
Friday, March 4, 2011
March 4, 2011 - Birthday Video Update
(From Grandma's FB Page)
OK, so it's obvious I have too many slides & NOT enough music. All the month markers are gonna have to go. Besides the dates in the pictures should pretty much set the timeline. Now to see what else I can cut or modify...
I would NEVER make it as a video editor. My head HURTS! It's worth it though for Jayden & CHERUBS...
OK, so it's obvious I have too many slides & NOT enough music. All the month markers are gonna have to go. Besides the dates in the pictures should pretty much set the timeline. Now to see what else I can cut or modify...
I would NEVER make it as a video editor. My head HURTS! It's worth it though for Jayden & CHERUBS...
Wednesday, March 2, 2011
March 2, 2011 - A letter to my Son on his 1st Birthday
(From Mommy's FB Page)
"A letter to my son on his 1st Birthday" by his Mom
Read Graveside on Feb 19, 2011
Posted to FB - March 2, 2011
One year ago today I welcomed the cutest, strongest, most perfect baby ever to come into the world and that baby was you. Every day I saw you fight like you never knew the words give up or let go and it was that strength you showed that told me to keep fighting for you and with you.
Then one day I went to your bedside and saw a baby still fighting to live trapped in a body that had already gave up and I knew that day I had to use the strength I had come to feel through you to let you go and finally be truly free and at peace, but I want you to know to make the choice to let you go was the hardest thing I ever had to do and every day I miss you more and more. I know I now have an angel always watching over me and for that I can smile even as I cry deep inside.
I want you to know CDH may have taken your life, but I will do ALL I can to stop it from taken any more because of the strength and memories you gave me, it may have been 1 year since you were born, but to me it feels like it was just yesterday.
I want you to know you are the BEST thing ever to happen to me and my proudest accomplishment and I will NEVER let you go or forget you. For ALL you gave me and ALL you have and will do I thank you and will ALWAYS LOVE YOU!
HAPPY 1ST BIRTHDAY Jayden,
Mommy's Lil' Man forever.
"A letter to my son on his 1st Birthday" by his Mom
Read Graveside on Feb 19, 2011
Posted to FB - March 2, 2011
One year ago today I welcomed the cutest, strongest, most perfect baby ever to come into the world and that baby was you. Every day I saw you fight like you never knew the words give up or let go and it was that strength you showed that told me to keep fighting for you and with you.
Then one day I went to your bedside and saw a baby still fighting to live trapped in a body that had already gave up and I knew that day I had to use the strength I had come to feel through you to let you go and finally be truly free and at peace, but I want you to know to make the choice to let you go was the hardest thing I ever had to do and every day I miss you more and more. I know I now have an angel always watching over me and for that I can smile even as I cry deep inside.
I want you to know CDH may have taken your life, but I will do ALL I can to stop it from taken any more because of the strength and memories you gave me, it may have been 1 year since you were born, but to me it feels like it was just yesterday.
I want you to know you are the BEST thing ever to happen to me and my proudest accomplishment and I will NEVER let you go or forget you. For ALL you gave me and ALL you have and will do I thank you and will ALWAYS LOVE YOU!
HAPPY 1ST BIRTHDAY Jayden,
Mommy's Lil' Man forever.
Monday, February 28, 2011
Feb 28, 2011 - CDH Cherubs Lost in Feb 2011
Please keep the families of these Cherubs lost in your prayers...
♥ Max ♥ Kelley ♥ Landon ♥ Travis Jr ♥
♥ Max ♥ Kelley ♥ Landon ♥ Travis Jr ♥
Feb 28, 2011 - Video Getting Close...
(From Grandma's FB Page)
Finished the re-edit on part 1 of the video. Although I see at least 4 slides that could look better they are presentable so I'm not gonna mess with them since I am so far behind...
Part 3 will be a quick edit but part 2.... sleep, what's sleep?
Finished the re-edit on part 1 of the video. Although I see at least 4 slides that could look better they are presentable so I'm not gonna mess with them since I am so far behind...
Part 3 will be a quick edit but part 2.... sleep, what's sleep?
Thursday, February 24, 2011
Feb 24, 2011 - Another Delay on Jayden's Rememberance Video...
(From Grandma's FB Page)
Video is close to done but had an 11th hour message from someone that needs to be in it, so will hold on the final edits for a few hours to give them time to get material to me. Won't be too long...
Video is close to done but had an 11th hour message from someone that needs to be in it, so will hold on the final edits for a few hours to give them time to get material to me. Won't be too long...
Tuesday, February 22, 2011
Feb 22, 2011 - Jayden's First Video Hit 300 views!
(From Grandma's Facebook Page)
So proud of how many people have heard about CDH that never knew about it before.
The second video is still in the works (I need a way to make more hours in the day!) but will be done this week somehow or another!
We are proud of you little angel Jayden!
So proud of how many people have heard about CDH that never knew about it before.
The second video is still in the works (I need a way to make more hours in the day!) but will be done this week somehow or another!
We are proud of you little angel Jayden!
Jayden's CDH Story 2/19/10 - 3/14/10
Sunday, February 20, 2011
Feb 20, 2011 - Jayden please be with mommy today...
From Mommy's FB Page...
Going to grandma's 4 a party.
I hope I do OK with the new baby that's going to be there.
Jayden please be with mommy today.
Saturday, February 19, 2011
Feb 19, 2011 - Happy 1st Heavenly Birthday Jayden from Mommy & Grandma
(From Mommy's FB Page)
Just celebrated Jay's birthday at the cemetery with my mom. It was perfect! I LOVE AND MISS YOU MY BABY!
~~~~~~~~~~~~~~~~~
(From Grandma's FB Page)
One year ago today I became Grandma to one of the 3 most beautiful grandchildren in the whole wide world. You will forever be with us Jayden. Grandma misses you!!!! ♥♥♥
Just celebrated Jay's birthday at the cemetery with my mom. It was perfect! I LOVE AND MISS YOU MY BABY!
~~~~~~~~~~~~~~~~~
(From Grandma's FB Page)
One year ago today I became Grandma to one of the 3 most beautiful grandchildren in the whole wide world. You will forever be with us Jayden. Grandma misses you!!!! ♥♥♥
Sunday, February 13, 2011
Feb 13, 2011 - A Song for our Angels...
(From Mommy's Facebook Page)
Lyrics from a song I truly feel our angels think as they fly into Heaven.
~~~~~~~~~~~~~~~~~~~~~
Wings to Fly
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
If now, I could grant my wish
I'd wish to have those wings
Those wings just like the birds
That fly up in the air
So high up in the air
With feathers bright and fair
No wealth nor power can make
My heart filled with such joy
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
The skyyyy
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
The skyyyyy...
~~~~~~~~~~~~~~~~~~~~~
Wings to Fly
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
If now, I could grant my wish
I'd wish to have those wings
Those wings just like the birds
That fly up in the air
So high up in the air
With feathers bright and fair
No wealth nor power can make
My heart filled with such joy
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
The skyyyy
Want to spread my wings and fly
Away into the sky
How I dream to be so free
No more sadness no more pain
No more anger no more hate
How I dream to have those wings and fly into the sky
The skyyyyy...
Saturday, February 12, 2011
Feb 12, 2011 - Upcoming Valentine's Day...
(From Mommy's Facebook Page)
This Valentine's day is going to suck since Jay passed on the 14th
EVERY Valentine's day will be a double edge sword.
A time of that being the month before his angelversary need I say more?
Mom and I are going up tomorrow to put up lots of Valentine's day stuff and then I return ON Valentine's day to mark his 11 month Angelversary.
Then the 19th is his 1st Birthday...
Man this month is HARD.
Feb 11, 2011 - Headstone Paid For!!
(From Mommy's Facebook Page)
I got my son's headstone paid for today.
They said it should be done by his one year angelversary on March 14th.
Please pray it is done on time and comes out just right as I have waited SO LONG and worked SO hard just to get it done this soon and make it look perfect for him.
Soon my Lil' Man ALL will know you're there!
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